Passing for Normal

I felt normal today because I got to drink coffee from my favorite place, something I haven’t done since February. There were tables very far apart, so I sat drinking and feeling a breeze on the lower part of my face. Such a normal thing that I’ve missed a lot. It made me think of other times I’ve felt normal, or—more likely—just felt as if I looked normal.

I remember passing for thin. Around 2013, I was at the tail end of a very low-calorie diet that took my weight down close to “ideal.” I took a ballroom dance class but never lost the feeling of being an imposter. The body I had, even as it moved while held in someone’s arms, felt like an illusion tricking them.

I remember passing for normal as a mom, mostly when my daughter was little and I’d sit in the park exchanging innocuous facts with other mothers while laughing at toddler antics. Although I was far, far from okay on the inside, the outside looked wholesome.

I remember passing for a normal person at a ball game. The SF Giants were in the playoffs and I was in the stands with my spouse and daughter. I wore an old orange Giants T-shirt of his. I was in orange, just like everyone else. I felt happy to be part of the crowd.

And oh, God, I remember passing for normal at jobs, back when I could. Wearing an ID badge, nodding at meetings, writing up notes. Helping others. Looking competent and adult between my secret anxiety-attack bathroom breaks.

2000 Words

I’m revising an interesting chapter in my memoir/outreach book this week.

In the chapter, I’m 44 years old and in rehab (again) for painkiller and sleeping pill addiction. I’ve arrived here with the absolute conviction that it will not work; that this is just a way station between life and death. My plan is to stay long enough to clear my mind so I can write a few goodbye letters. Then I’m going to leave and kill myself so my family doesn’t have to deal with my addiction and mental illness any more.

All right…in 2000 words or so, describe this state of mind to a reader well enough to draw them in and give them a shadow of understanding. Convey the numb and matter-of-fact certainty of one’s worthlessness and lack of hope. Use images and scenes to increase a sense of reality. Make everything you’ve already written coalesce into this moment. Do this while making sure the writing is free of melodrama or self-pity.

Ready? Go.

Yes, I Play Animal Crossing

I admit it—my daughter and I both find comfort in video games right now. I know a great many people, especially creative ones, who look down on those who play. I know there are valid issues surrounding the effect of both games and other media on the human brain.

That being said, I find video games good for anxiety management. There are times I can’t focus on writing, or wholesome leisure activities like reading poetry. When friends say they’re playing too much during the quarantine, I understand how they feel, but I don’t beat myself up about how long I play.

Animal Crossing: New Horizons came out on the Nintendo Switch console just as the shelter in place was beginning. Because of this, it’s even more popular than it was expected to be. When I can’t sleep, or desperately need something to do with my hands, I’m on my virtual island.

I see it as harm reduction. Sure, gathering pretend resources and building things that aren’t real are not the best thing to do with the times I’m not able to work, but I could be doing worse. I could be relapsing on drugs. I could be overeating and making myself sick. I could be dwelling obsessively on the world’s situation to the point of convincing myself there’s no point in staying clean.

If the worst thing I’m doing is catching fish to sell to a capitalist raccoon, I’ll take it.

What I Deserve

Do I deserve coronavirus?

As the pandemic becomes more real and more obviously not going to go away any time soon, I’ve started to be more afraid of getting sick. I’m lucky enough to be sheltering in place except for trips to the grocery store, and I live in an area where folks are obeying the mask rules. But I have an illogical conviction that I’m going to get sick. Seriously sick.

I know it isn’t illogical to think I’ll be exposed if this goes on long enough. And I’m somewhat vulnerable because of being over fifty and having diabetes. But my odds are still decent for having a less catastrophic illness than my imagination portrays.

When I sat and unpacked this feeling a bit, I realized it comes from the part of me that thinks I deserve to get sick. That I don’t deserve to stay healthy when so many “better” people aren’t.

Survivor’s guilt. I know it. I’ve tasted it often when thinking of my fellow addicts who died, or fellow mental illness sufferers who didn’t make it through a bad episode. Especially when I think about the roles privilege played in my survival—white privilege, education, health insurance, etc. Regardless of how hard I worked, these other presences can’t be ignored.

And there’s no doubt privilege plays into my survival odds in the pandemic as well. Racial and economic inequities are achingly clear. So it makes sense that I’d have these thoughts. But too many of them are dangerous for me because they feed depression and apathy. Self-care is sliding. I’m not going out for walks. Sleep is worse than usual (and usual sucks.)

Writing sucks too. But today I did small revisions on a segment. And I wrote this.

Control, See?

I am desperate for some shred of control over my life, my future, my daughter’s future…control I do not have.

Some can take this desire for control and turn it into concrete action, no matter how small, toward improving the situation.

Sometimes I manage that, especially if I can define writing as a beneficial action. Said definition is of course a matter for ongoing debate. I can also make masks, however inexpertly, or clean, or cook meals for my family.

But as many of us do, I’m also seeking control in other spheres of my life. Spheres not directly related to the big problems; spheres where I can have a feeling of control.

Cue the eating disorder.

I’m hearing it from many sufferers…the stress is driving them to more frequent binges, or to more restrictive behavior if that’s a problem, or both.

I knew I’d never make it through these months staying the same weight. Maintenance is not my strength. I’m either going to gain a lot of weight or lose some. In an effort to choose the latter, I put myself on a stricter regimen a couple of months ago.

It’s helping me avoid binges. I’ve even lost a few pounds. But I’m achingly aware of how I cling to the faint sense of control it gives me. I’m thrilled when I lose a pound; I’m worried and upset when I don’t. In the face of this overwhelming world, my brain dwells on such a trivial thing.

I understand. I know it’s what brains do sometimes. I know I’m not alone. But it’s humbling to watch myself race in a circle, knowing full well why I’m doing it, yet still racing.

Chapter of the Week

Every Friday, I get to hang out with a few other writers and read the latest chapter of my book to them. The hanging out is done online right now because of the pandemic, but it’s still enough for me to make sure I at least revise a chapter for the week.

I’m at a stage where I’m going through the book chronologically and doing tweaks and consolidations. It’s the first time my group is hearing the chapters in order, because the first round of chapter segments were created and shared in haphazard fashion. Sometimes they skipped decades forward or backward.

Going in order is harder. It’s scary to be marching forward, one chapter a week, knowing that at some point I’ll reach the end of pre-written stuff for revision and have to write a few missing chapters at the end. Then an introduction. And then it will be a fucking manuscript.

And I’m doing this during the pandemic, with the future so uncertain, and my critical voice shouting that no one’s going to want to read anything about any other subject besides this for the next indefinite number of years.

Calla Lilies

(Reposted from my archive, Not This Song)

My daughter brought me calla lilies on Mother’s Day.

It was 2011, and instead of carrying them into my room or proudly displaying them on the breakfast table she held onto them tightly during a long car ride.

She and her father signed in and had the bouquet inspected, then waited while I was notified that my visitors were there. Only then did she get to give them to me. Only then did she get to be hugged, and hear how beautiful they were, and see me read the little poem she wrote on the homemade card shaped like a butterfly.

That is Mother’s Day in rehab, and I can never see calla lilies without thinking about that day. I wasn’t the only one getting cards and flowers, and I wasn’t the only one to gaze at them with a mixture of emotions too tangled to articulate.

Mother’s Day is hailed by therapists as one of the most stressful days of the year for a reason–none of us is without feelings on the subject of the mother we had and/or the mother we are. Told by commercials and companies how we should feel about our mothers and children, we writhe in discomfort with our more complicated internal landscape.

Complicated it may be, but it’s a pretty fair bet that being institutionalized isn’t in any of our personal “what kind of mother I want to be” manifestos. It kind of kicks things up a notch in terms of regret.

After that day’s visit was over, I looked at the smooth whiteness of the lilies beside my bed with a kind of doubled vision, seeming to see bouquets like it in many other places. I knew that many children wouldn’t get to deliver one at all due to the rules of the rehab, or hospital, or prison their mother was currently inhabiting.

I’m happy to be at home on Mother’s Day this year. Didn’t get any lilies. Don’t want any. But she can give me flowers, or a hug, or a thorough trouncing in video games, any time she wants to, because I am here.

Mothers who can’t be at home today, I remember you. I know better than to judge your love for your children based solely on where you are. Don’t give up.

Children, fathers, grandparents and all who visit, I remember you. Thank you for your love and effort.

Happy Mother’s Day.

Masks

I am sewing masks, the way many people are lately. I don’t sew very well, and I swear like Samuel L. Jackson whenever I stab myself with a pin, which is often.

I am asking myself frequently whether it’s worth the amount of time, frustration and literal blood it takes for me to produce a small fraction of what I see better sewing folks and/or those with more physical and mental stamina are producing.

It has been many years since I approached what I think of as a “normal” level of productivity. Because my disability is mostly invisible (unless you live with me) I struggle with internalized ableism and hold myself to a standard I will never meet.

I know I’m not alone. I know I shouldn’t compare myself to others. But sewing’s the least of it…I pour myself into my writing in little chunks, knowing I’ll never be able to put in the kind of hours, or networking time, or number of events others can.

These feelings are normal for me. They don’t get argued away. I just have to make sure my deeper beliefs coexist with them: Yes, what we do matters. Yes, every little bit helps. Write the book. Write the poem. Make the mask.

Holding On

So what’s the pandemic like through the eyes of a mental patient and recovering addict?

Well, there’s a lot of pressure to keep myself together, of course. Strong voices telling me this is NOT the time to have an episode or need a meds adjustment. And certainly not the time for a relapse on drugs.

It’s scary, because while not doing drugs is something I can control to a degree by practicing recovery techniques, the mental health thing is under less control. I can take my meds religiously. I can try to eat well and get a little exercise and do things that connect me to what I value. I can do all this, and it still might not be enough because neurochemical shit happens sometimes.

Meanwhile, all the “normal” people around me are experiencing levels of anxiety they aren’t used to. They need me to be functional so I don’t drain their energy away from managing their own stress.

“One day at a time,” is more real than it’s been for a while. I try to make plans…what part of mask sewing I’m going to work on today, what I’m going to eat for lunch, whether I’ll go for a walk. And while I do that I’m acutely aware of the degree of privilege I have compared to some of my fellow sufferers.

I have loved ones in my house. I have access to the medicines I need. For now, my family isn’t in danger of losing our home or not having enough food. I’m lucky.

Do you hear that, brain? We’re lucky. Now show your gratitude by refraining from any shenanigans until further notice.

Things I’m Not Doing

Right now, a drug addict paces in the ER, so desperate for a fix that COVID-19 holds no terror for them.

Right now, some sick person is waiting too long for an ambulance because two paramedics are running up to an addict’s apartment to Narcan them for the third time this month.

Right now, an addict is spamming one of their doctors’ overloaded phone lines with demands for prescriptions.

That addict could be me.

It’s been more than eight years since I got clean. Since I experienced the magic mix of luck, grace, privilege, and yes, hard work too, that helped me (so far) beat the odds.

If I were still deep in my addiction right now, I could do any of the things I’m thinking about. It would feel like a matter of survival to get the drugs I needed, and the threat of deadly illness to myself and others would feel very far away.

Someone who routinely takes a handful of pills they know might kill them isn’t exactly dialed in to any logic of self-preservation, let alone consideration of others.

I’m not doing anything great in the pandemic so far. I don’t work in an essential business like health care or food acquisition. I’m one of the many whose most useful contribution is to stay the fuck home and take really good care of myself to minimize the chances of getting sick, or having to go the ER for any other reason.

But at least I’m doing that instead of being an active liability. And if all I’ve accomplished in the past eight years is just developing the ability to be less of an asshole at a time like this, I’ll take it.

Sidelines

Yesterday, I heard an opinion that those like me who live with mental illness won’t suffer as badly during the pandemic as those who are used to being happy and productive.

The logic goes like this: we’re used to feeling bad, we’re used to sitting on the sidelines and not being able to do much, so how is this different?

I didn’t know how to react when I heard this. I wanted to talk about what it’s like to be seen as a constant liability to the world. I wanted to point out that right now a lot of mentally ill people are trying extra hard not to be a burden on an overloaded system. When their symptoms torment them, the knowledge of the crisis feeds their shame and lowers their resistance to judgment and stigma.

There is no time to be mentally ill while the world burns, the thought repeats. So what if they’ve run out of their meds, or if the only thing keeping them going was that therapist they can’t go see now.

They will not ask for help. They will try to cope as best they can. Some will fail to make it through.

The Sin of Happiness

I have a secret. A dirty, dirty secret. One that’s been embarrassing me more than my drug addiction, or mental illness, or other general faults and vulnerabilities.

I’m happy.

Writing that makes me immediately feel the need to write that I’m also sad, frustrated, angry, worried, afraid, et cætera. As is normal for the times we are living in. And those things are true.

But, at certain moments, I’m happy. And when I am—here’s the REALLY embarrassing part—I think I’m happier than I’ve ever been in my life.

The last five years have brought a flowering of creativity and the growth of a completely illogical degree of self-acceptance. Never total, never unchallenged, but there.

As the world goes to shit around me, I’m having fleeting experiences of joy and wholeness. My superego tries to tell me I’m shallow and self-absorbed for feeling these things. My heart is not listening.

Meeting a Reader

I had another “first” last week; the first of many new experiences for someone who’s never written a book before.

I was at a sort of cheesy group mindfulness class. Most of us had been referred there because we suffered from depression, addiction or other conditions, and didn’t get to see a one-on-one therapist very often on our health plan.

So, one woman in the class talked about not thinking the techniques we’re learning would work for her. I’ll paraphrase what she said:

“Okay, so maybe this homework will help with my depressive thoughts and feelings. But what if I have depression and addiction? What if I have depression and addiction and trauma to deal with? I’m supposed to just let it all in? It’s too much. I could never address it all at once. But if I stop working on any of them they sneak in and sabotage me.”

Her voice was edged with both resentment and resignation. Resentment because she was already feeling dismissed and expecting to be patted on the head and told to go play like a good girl. Resignation because even as she spoke, she didn’t think speaking up was going to do any good.

I wanted to let her know she was not alone. I wanted her to know someone understood what it’s like to deal with multiple conditions. Understood the “it’s too much” feeling, understood what it was like to feel different no matter what therapy you’re trying. What it’s like to throw yourself into treating one thing and work your ass off only to be tripped up by one of the others, until you’re where she is: a place of “it’s too much.” And I wanted to tell her there is life and growth coexisting with that place.

I said some things. I named the different conditions I live with. But what I really wanted to say to her would have taken a long, long time.

What I really wanted was to give her my book. Have her take it home, curl up and read it cover to cover and know she wasn’t the only one to feel some of what she felt.

The contents of my book are what I wanted to say to her. And that makes me feel that, no matter how hard the writing and editing is, I am on the right track.

Safe

“Safe space” is a concept these days, and I’m for it. But is there really such a thing as a safe space for me?

I’ve been struggling lately with the fact (as I’ve mentioned) that I no longer feel safe talking about any kind of physical or mental health issue with some people. From now on, when certain people greet me and ask how I’m doing, I am in perfect health and having a good day. Like a gazelle in a herd, I must not show weakness or injury lest I be targeted by wolves.

“But wait,” I interrupt myself, “isn’t it important to be authentic about your issues? Might you be missing an opportunity to be helpful to someone?” Well, I don’t put up shields lightly. This is a case where I’ve shared my truth several times and had it discounted.

So that’s become a space that is safe for me to talk about writing, but not other things. There are spaces where I can talk about addiction, but too much talk of psych treatment might get me rejected. There are therapy spaces where I can talk about mental health, but have to hold back on talking about my writing lest I be accused of intellectualizing.

Sometimes being unsafe is the right thing to do, of course. Sharing honestly in a recovery meeting may help someone feel less alone, so it can be worth consequences to me. I have to weigh the risks and benefits and make a choice about how transparent to be.

The book in progress, of course, represents a choice to be extremely transparent. It’s possible to do because I can tell myself that no matter how many “unsafe” places it ends up, it has a good chance of also reaching places where it could help someone else feel a little safer. A little more seen.

When Truth Doesn’t Matter

“Wait a minute,” I can hear readers thinking. “This author’s all about self-disclosure and authenticity and all that jazz. Truth has to be important to them.”

You’re right. Truth, in general, is of paramount importance. But I’ve recently been given food for thought about one particular circumstance in which truth may be a bit irrelevant.

Cognitive-behavioral therapy has been very popular for a while, and is helpful for many people. A central principle of CBT is to question your negative thoughts and assumptions, learn to recognize illogical thinking, and use various techniques to decrease the number and severity of negative thoughts you have.

In other words: get into the habit of believing, and trying to prove, that your negative thoughts about yourself or your life are not true (or at least vastly exaggerated.)

Although I find many of the techniques useful, I have encountered two issues with this. First, since the goal is to change my thinking, I feel like I’ve failed when negative thoughts are still such a big part of my consciousness. Second, the content of some of my negative thoughts is true and trying to argue with it doesn’t help at all.

My planet really is in trouble. I really do regret not writing for decades. Relatives really are going to get harder to deal with as they age. I really did irreversibly fuck up my body in some ways. The odds of my book getting published really are low.

Anyway, I just finished a book called “The Happiness Trap” that was recommended to me. I tend to avoid self-help books, as a rule, but I decided to give it a try. It advocates that we don’t try to argue with our negative thoughts, or control how often we have them, but rather work on coexisting with them and using mindfulness techniques to be less affected by them.

It suggests that when I’m aware of a negative thought I’m having or story I’m telling myself, I don’t ask myself whether it’s true or not–only whether, at this moment, it is helpful.

Third Time’s the Charm?

Today I wrote the third version of the few pages that mark the beginning of a new phase of my book. The first version got okay feedback, but I and my fellow writers agreed the voice wasn’t quite right.

So I wrote it for a second time. I changed the voice and changed the tone in a way I thought would sound more personal. I put in some new, clever stuff as well. Satisfied, I stuffed the stapled pages into my backpack and brought them to the group.

They hated it.

I wasn’t even surprised–by the time I finished reading the section out loud, I knew it wasn’t working. What had escaped me at the keyboard became obvious to my ears. I hadn’t just failed to improve it; I’d made it much worse.

So today I wrote a third draft. It’s different from the first two; it doesn’t try to cover as much and it’s definitely more personal. (Cried while writing it, which is usually a good sign I’m being authentic.) But I have no idea whether it works or not.

What’s really hard is that I haven’t got a plan for what to do if this isn’t better. I’m pretty sure I’ll need to put it aside for a while and try to work on another section, but I don’t want to. I want to be happy with this piece before I do later ones.

And I want a pony.

First Principles

What helps me when I get overwhelmed by my writing projects, or by life in general? Sometimes nothing…I get to be overwhelmed for a while. I do mindless things, try very hard to choose mindless things that are not self-destructive, and generally buy time until the intensity of the feeling passes.

But when the overwhelm is about my books, it helps if I can go back to what I call my first principles: Why am I working on these projects? What is my duty in regards to them? Do I understand that I am not in control of how they are received when the time comes to send them out? Am I willing to do my best, with no guarantee that they will be published or widely read? Am I willing to resist comparisons and fight insecurity when I hear of fellow writers’ productivity, networking and other successes?

The insight I had (and was questioning) about the structure of my nonfiction book has crystallized into an updated plan. This is exciting, and it’s making me more connected to the book’s arc…which, in turn, sends my mind into the future where the book’s a book and I’m querying agents et cætera. This is not the time for those thoughts. Maybe some writers can do it, but I know I need to concentrate on getting a draft of the book done.

I’m not trying to seal off any knowledge of or respect for the realities of the publishing industry. I’ll continue to get feedback from other writers, but right now I know I’ll hamstring my creativity if I try too hard to write for anyone but me and the people I’d like to help.

Inspiration or Hypomania?

Both of them present the same way: I have an idea. An amazing idea. The best idea I’ve had in a long time. My head begins to whirl with plans for executing it, alternative plans, and alternatives to the alternatives. I sleep even less than usual because the ideas keep chasing themselves around in my head.

Eventually, one of two things happens: If it’s just inspiration, I question it obsessively, but (hopefully) eventually overcome procrastination and insecurity to take some step toward carrying it out. If it’s hypomania (a symptom of my condition, Bipolar II) I just whirl and whirl until I eventually burn out and crash. After I come back from whatever self-destructive crap I might have done while crashing, the idea seems ridiculous or lackluster.

But what if it’s not either-or? What if it’s a little of both?

The large-scale planning of my book continues. It’s reached the next level after a recent attempt at rounding out a chapter instead of focusing on shorter segments. For several days, I could tell my brain was in high gear, no matter what I was doing. I did mindless things quite often in an effort to slow down and relax, but while I was doing said mindless thing the thoughts were churning in endless circles.

Then a breakthrough seemed to happen: I had a vision for a new way of organizing the chapters that would be more blended and less choppy. It calls for changes about what goes where, using the 90,000 words I have so far as raw material but not necessarily in their current segments.

Evidence on the side of inspiration: I’m already making a lot of notes and at least trying to get the ideas down in some form, which counts as action.

Evidence on the side of hypomania: My brain fucking hurts and I really want to go eat donuts to club it into silence.

Tear It Apart

So I’ve written something. Do I have the guts to rip it apart and put it together a new way? Or more than one new way?

The workshop I went to a few days ago talked about this. It was interesting to hear–although I’ve read a lot about revising poems, I’m not as exposed to writers talking about how to revise a short story or book. Joshua Mohr, the instructor, wasn’t shy about suggesting big changes instead of just small ones.

Chop out the first 600 words of this scene and start here instead. Move this scene and do this other scene first, then put in some of the first scene with suitable alterations. Shuffle the chapter order in your book. Cut a chapter that no longer fits with the arc of your story. Take the whole damn piece and rewrite it in a different voice.

I notice that, even when I’m excited about the possibilities a change has, I’m resistant to some of the big ones. One reason is I cling to the version that exists because it’s been around long enough to be my baby. To change it, I have to say goodbye to the previous version–or at least shove it into a smaller area of my brain to make room for the new one.

Perfectly normal. But the other reason change is hard for me is one that’s more problematic: it’s an attitude of scarcity.

Wait, I spent time and effort writing this. Maybe every word was an ordeal if I wasn’t in a good place at the time. If I rewrite a scene, or drop it completely, all that effort has been wasted! Oh no!

This flawed logic leads me farther into the land of scarcity: I only have a certain amount of time, strength, focus. I have a limited amount of words in me! If I don’t use every single one I manage to squeeze out, I’ll never write the things I want to write!

Unsurprisingly, I don’t write very well when I have this attitude. Nor do I enjoy it very much. My first book’s an intimidating project, but I must make room for the happy preschooler with her scissors and paste.

Cinderella

I spent yesterday in a fairy-tale world, feasting on delicacies and dancing with handsome princes and princesses. But the ball had to end, and I departed without leaving so much as a shoe behind.

Okay, so it was really a one-day writing workshop at the office of ZYZZYVA magazine in San Francisco. They accepted my piece for the event, and I’d promised myself that if I got in I’d go. So I did.

I call it a fairy-tale world because it’s so unknown to me; I had never been to that type of workshop before. I compare it to the ball because I associate it with having more money than I have; the cost was such that I don’t expect to be able to do such a thing again any time soon. Let’s just say I got my Christmas present early this year.

I enjoyed myself very much. The author who led it, Joshua Mohr, had insightful things to say about writing personal narrative. Here’s a distillation of what I feel was the most valuable reminder for me as I work on my book:

When you write a narrative that’s about yourself, you still need to treat the “you” in the story like a character. You need to pay attention to the same things you’d look at when working with a fictional character you’re creating: Are they interesting? What am I doing to let the reader get invested in them and want to know more? Is it clear what they want, or think they want? What are their obstacles, internal and external? Am I building complexity; giving the reader new perspective on them with every scene? Do I avoid either idealizing or demonizing them?

This kind of perspective will help me as I make choices about the structure of my book: order of chapters, what to keep and what to cut, and what isn’t written yet but needs to be.

I’m aware of a part of me that feels envious when I think of how many workshops and classes some of my fellow writers go to, or that focuses on my wistful desire to be someone who can do the same (or, for that matter, who can submit a ton of stuff without worrying about how those submission fees will add up.)

But that’s my baggage talking. It’s understandable that I want these things, but focusing on what I don’t have is toxic. I create things when I am focused on what I do have, what I truly want, and what I can do to move closer to it.

The Devil’s Playground

There’s an old saying that “an idle mind is the Devil’s playground.” This can be especially true for addicts. Not only addicts, of course, but anyone to whom the inside of their skull is a potentially dangerous place.

Today I have the house to myself for eight hours. I’m not used to being alone here for more than a couple of hours at a time, because between my spouse and our 19-year-old there’s usually someone around. But my daughter just got a job (yay!) so she’s at work (weird!) and I’m here by myself until it’s time to go pick her up.

It’s not that I don’t have plenty of things to do. I could work on one of several writing projects I have going. I wouldn’t even have to write; I have storyboarding and planning I need to do. I could unpack more stuff. I could put away the laundry sitting in the dryer. I could take a walk, or do ten minutes of my neglected Tai Chi. I need to take a shower. If I feel the need to be completely unproductive, I could watch a show or read a book or play a video game.

Or, I could eat things that harm me. I could sit and stare at the wall, building darker and darker scenarios in my head, with no one here to ask me if I’m okay. I could call up someone toxic in my life and have a conversation I’ll regret. Anxiety has been especially troublesome for me lately, either paralyzing me or goading me into unwise action.

So for the moment, I decided to do this. And now that I’m done, I’ll have to decide what to do next.

You Don’t Say?

So, my psychiatrist thinks I am depressed.

More than usual, I mean; my general diagnosis includes a type of depression. But just because I told him about how often I’ve been thinking about death lately, and how much I’ve been struggling with food and other self-destructive behavior, and how much time I spend in circles that talk a great deal about the dark aspects of all our futures on this planet…he thinks I need more help with depression.

So out he comes with this particular health care organization’s chart of meds and starts suggesting things to add to my regimen.

Poor man. He means well. But either he hasn’t been taking notes at our previous sessions, or he hasn’t been looking at them.

The names of the meds are listed in little boxes by group, and as he proposes things I have to keep shooting him down.

No, we can’t add anything from this box. I’ve tried many of them, and they increase anxiety to a dangerous level. No, I don’t care if this one is new, I’ve seen the chemical formula. They moved a hydrogen atom so they could get a new patent, that’s all.

No, we can’t add anything from this box. They’re all addictive. I know my addiction history is in my chart. I made a point of putting it there.

Dear God, no, we can’t add anything from this box. Two of them almost killed me when I tried them; I’ve told you that before. You cannot give me any of these unless I’m an inpatient under close supervision so I don’t walk into traffic.

We could try a slight increase in this one med I’m already taking, or we could try one from this tiny box here…or maybe we could get me a therapist I could see more than once every six weeks.

Ha, ha, just kidding, I know that’s not going to happen.

Doing Nothing

My job today is to do nothing. Specifically, my job is to do nothing self-destructive. I hate days like these, where I’m just trying to get back to zero by letting my body and mind recuperate from whatever abuse I inflicted on them recently.

But the days when I’m actually doing the harm are, of course, worse. After nearly a year and a half of grace on my let’s-keep-diabetes-in-remission way of eating, I began to struggle in the spring and have not yet recaptured the blessed place I was in. A week or two of difficult abstinence has tended to be followed by a few days at a time of the hideous and painful rituals of binge eating. Although I haven’t relapsed on drugs, the eating disorder brings plenty of suffering in the form of sickness, shame and secrecy.

Sharing about this is important, because I don’t ever want anyone to get the idea that the work I’ve done on myself has solved anything. It hasn’t. I’ll be dealing with my issues for the rest of my life, just like I’ll be an addict in recovery the rest of my life.

If you think that’s a defeatist attitude, I understand, but I must disagree. Understanding that these things are a part of me and my life, rather than some demon I can exorcise forever if I just get it right, has been vital in acquiring more self-acceptance.

This is only day two back on plan. If and when I rack up a few days and get my mind clearer, I may look at whether to get in touch with my psych team over the general pattern I’m seeing (sleep worse than usual, biting nails until they bleed, anxiety spikes.) It’s the usual dilemma: are my struggles a sign that I need more help with my symptoms, or do I just need tough love and other attitude adjustments?

But today, the goal is nothing. Like the old story of someone who’s deep in a hole crying out to their God, “Please, God, get me out of this pit!” And God replies, “Okay, but I can do it faster if you stop digging!”

I’m not digging today. And that’s going to have to do.

Raw

Don’t you hate it when you bite your nails late at night until they bleed? And tear bits of skin off around the nail beds, exposing raw red flesh? And it hurts, but only for a little bit, and you finally go to sleep. Then you wake up in the morning feeling as if your fingertips have been dipped in acid.

Washing your hands is excruciating. The thought of doing the dishes makes you want to cry. But the dishes don’t care. They sit there waiting. And you don’t live alone, so you can’t just let them pile up. And you think about asking someone else to do them, but you tell yourself you don’t deserve that kind of consideration, because you did this to yourself.

Then you try to put bandaids on all ten fingers so you won’t keep bumping the skinned flesh into things. Then you realize you need to wash your hands.

Then you sit down to work on a poem and can’t stop looking at your stubby, raw, red fingertips moving over the keyboard.

Oh….what’s that you say?

Not everybody does this?

Shit.

Raising the Stakes

When my drug addiction was at its worst, the stakes were life or death.

Many years later, the stakes are still life or death.

But it’s different too. Back then, in the state of despair I was in, losing my life felt like a numb inevitability. My major regrets about the idea had to do with how it would hurt the people I loved.

Now, I feel as if there’s a lot more to lose. Through a process that has taken years, I’ve come to value the things I do have to give. I feel at least somewhat useful to my family and even my community. I have things I value so highly, and so sharply, that the thought of losing them makes the idea of dying before my time suck. Especially my writing.

I’ve been clean for more than seven years now, but I recently had a couple of brief bouts with overeating after being relatively sane around food for the past 2 years. Each only lasted a day or two, thank goodness, but it was enough to remind me of the insanity it brings. One thing I really noticed was how frustrated I felt not to be able to write or even think effectively about writing. The obsession, the fear of gaining weight, the shame…they were all there, but there was also the sharp awareness of a wall the binge eating had put between me and my creative self.

I have a richer life now; a more precious life to be destroyed if I make the choice to use drugs again.

Writing Into the Void

So, about that voice in my head saying civilization is doomed and there is no point to me writing…

I’ve been writing a lot, both poetry and prose. My nonfiction book is beginning to take shape in my mind as the segments I write start to arrange themselves in order and bring ideas as to what should go between them. It’s raw, it’s real, and I genuinely believe it will be worth reading. My first full-length poetry collection is taking shape nicely as well…neither of these things will be done soon, but they have a new level of form and reality.

Then I hear the latest lecture on climate change and nihilism crashes into me. We’ll all be dead soon. No one will ever read my work and it wouldn’t do them any good if they did.

Granted, those thoughts belong to the extreme end of the spectrum…not everyone believes in the very short-term extinction of our species. What is certain is that change is here, much of which is irreversible. Life will get harder, conflicts over dwindling resources will grow, and catastrophic events will occur.

So is there a point to me writing about the subjects I do? Why try to help addicts, or the mentally ill, or both, when the larger world is in crisis? Why does it matter, in the quick or slow apocalypse, whether John Doe stays off drugs or out of the hospital?

I start to drown in these thoughts, and must return to my most basic principle:

It matters to me.

Even if it’s only about how present people get to be for whatever happens, it matters to me.

Being conscious and capable of love matters. Suffering and dying as a human rather than a numbed zombie or cornered animal matters. Being in the mix, a member of humanity, instead of watching from the sidelines, matters.

Poetry to the Rescue

Last post, I wrote about being flooded with old memories as a result of nonfiction pieces I am writing. Fortunately, I know one remedy to feeling overwhelmed by a project: Write on something different for a bit. It won’t fix everything, but it helps.

So I took advantage of a little writers’ gathering to focus solely on writing poetry; specifically, the kind of writing that strives to be uninhibited and often leads to brand new drafts of something. Very raw drafts, but a thing exists that did not exist before.

A short project to rest from a long-term project. A project done for simple joy of creativity instead of the more purpose-driven work. And two brand new poems, hurray!

A change, a breath, an infusion of fresh energy. Checking in with the poetry part of myself that has felt a bit neglected for the past month or so.

I don’t know what the difference between a writer and a poet is. Maybe there really is none. But my psyche relates differently to what I think of as my poetry from the way  it does to my prose. Both are vital; neither appreciate neglect.

There’s more work for me to do. I still feel shaky and vulnerable and craving. But I did one positive thing, used one positive coping mechanism. Go me.

Flooded

How do we know when we’re writing too much?

It’s tempting to think they’re’s no such thing as too much. Maybe that’s true for some people, especially if the things they write cover a variety of styles and subject matter.

But this week, I’m conscious that I may be writing too much of a project too quickly. My nonfiction project contains many memoir-style pieces for the purposes of outreach, and I am working on some that cover a very dark time in my life.

My task is to convey, at different times, an authentic tone of what it’s like to be a practicing addict, to take doses of drugs you know might kill you and not care as long as you get high, to be deep in clinical depression or overwhelming anxiety, to be suicidal, to be convinced that suicide is the best thing you can do for those you love, to know that you have lost and drugs have won, to plan your own disappearance and death, to know that you deserve nothing better…

My task is to write it so well that an addict or a mental illness sufferer will identify strongly, while someone not familiar with the feelings will have a window opened to a bit of understanding.

Strong feedback I’m getting tells me I am at least partially succeeding in this. But there’s a cost: I’m writing it authentically enough to affect myself as well.

Floods of old emotions, ones that are always there but more in the background, wash over me. Old grief, guilt, and shame come up often. The otherworldly loneliness of that time echoes.

Too much of this is dangerous to my current mental health. I’m noticing hits to my self-care and changes in how I relate to my family.

These things need to be written…but I need to pace myself.

Eight Days

This morning, I had thirty-five days to get ready for the feature I’m doing. Now I have eight.

Long story, but due to some unavoidable circumstances I’ve just been asked to feature on October 12 instead of November 9 as originally scheduled. So now I have eight days. The chapbook I was going to make for the reading doesn’t exist, unless I want to do a quick and dirty job within a week. While working on a couple of special poems I really wanted to have ready.

The little kid in me is throwing a tiny tantrum because she wanted everything to be perfect. It’s only the second actual feature I’ve ever done, so the novelty has not worn off.   I really want to be amazing, and I need to understand that’s not how all of this works.

It’s not. If I bring my desire for everything to be perfect and impressive, I’ll be distracted from being authentic.

My Book is a Bastard

So what are these projects that have been sucking up my writing spoons? Well, as far as poetry is concerned, I am trying to put together a chapbook for a feature I am doing in November. It will be the first time I offer written poems for people to take home. It’s just a low end thing, but I have to go through the horror of figuring out which poems to put in it.

The other one, the really new one, is my nonfiction book. I have always had a vague idea of using the essays I’ve written for the last five years as raw material for something, but recently I’ve hammered out much more of a plan and begun writing pieces that are targeted specifically for that.

This book is a bastard. A hybrid. A mutant.

Why?

Because it doesn’t fit into an easy category, like memoir or inspiration or self-help. I don’t want it to be just another “here’s the story of some shit that I survived” memoir–but there will be memoir pieces in it designed to help a reader identify or get a perspective on eating disorders, addiction and mental illness. It’s not a “here’s what to do to change your life for the better” book–but it will contain some ideas of things that might be worth trying, or tips on finding your own ways. It’s not a psychology book–but part of what makes it a bit different will be the experience of going through some of this stuff as a person who already had a clinical background, and where knowledge is and isn’t helpful. It’s not a “spiritual inspiration” book–but will certainly contain some metaphysical thoughts on why not to give up.

From a marketing perspective, some might say I’d be well advised to change it to fit a category, because bastards are hard to market. But I don’t think I can do that; I need the outreach element to be there. We’ll see. It’s all so embryonic that the most important thing to do at this point is to keep writing.

Something New

Six years of essays, three years of poetry…and now adding something completely different.

My essays have always been personal, but in response to some feedback from fellow writers that saw a few of them I’ve been experimenting with longer pieces of more intimate and detailed memoir. These would ultimately form part of my pet long-term nonfiction book project.

I’ve gotten very good response on them so far, but it is a new kind of writing for me with a new quality of emotional experience. I need to be careful not to get overwhelmed.

I also don’t want to neglect my poetry (haven’t so far) or posting here on this site (which I definitely have.)

I have this idea that I’ll challenge myself to post every day for the coming month of October–but, knowing me, there’s a certain probability of that being bullshit. I want to post a lot, though, because there are interesting things happening with my creative life and its interaction with my health and sanity.

The Eye Roll

Part of living with bipolar disorder is encountering the Eye Roll from loved ones.

The Eye Roll goes like this: I, currently in an “up” state of mild or moderate hypomania, gush about all of the new things I have decided to do. Classes I have decided to take, new languages I have decided to learn, writing projects I have just decided are awesome and should receive devotion, exercise programs I have decided to start…you get the idea.

These bursts of dedication can happen to anyone; certainly we have all had the experience of starting and abandoning new projects. However, with hypomania they are ALL trying to happen at once. In a single week or less I experience–and babble to my family at length about–all of the above and more.

So the Eye Roll is a normal reaction developed over years, in someone who has watched me start so many new projects only for them to disappear during my next depressive phase (and often, rather than reappear during my next up period, be replaced by my NEW set of great ideas.)

My loved ones want to encourage me in taking actions. They’d rather see me engaged than depressed, so they try not to make the Eye Roll obvious. Nevertheless, it is felt and I have enough self-knowledge to respect it.

The spirit behind it has helped me put some cautions into practice. If an idea or desire recurs over months, during a series of up phases, it may be worth following up. However, if it is brand new, it’s not an idea I should spend significant money on or make any life-altering decisions about.

A little money, well, that might be okay. Buying a new wall calendar to lay out plans, or downloading an app, is no big deal. But it’s NOT the time to buy a treadmill, spend hundreds of dollars on a class, or get a tattoo. I need to wait and see if my wonderful new idea has legs or not.

Useful

How do I maximize my usefulness to others? How do I assess my strengths and weaknesses honestly and make good choices about how hard I should push myself at any given time? How do I repeat this assessment frequently and deal with the self-doubt that tries to make me push myself too hard out of guilt or shame? How do I resist the impulse to apologize constantly for what I am doing and the fact that it’s not enough?

I’ve written on this theme before. I’m sure I will write about it at intervals for the rest of my life. Two years ago I wrote this, in fact:

“I don’t want to live my life as a walking apology, but I also don’t want to become the kind of person who sees no need for regrets about how my condition and/or my shortcomings affect others.

Where is the line; where does a realistic assessment of my condition end and making excuses begin?

Could I be allowed to stop making promises, or even implied promises, that set me up for the inevitable apologies?

There’s no way for anyone else to assess, or even for me to assess reliably, the subjective amount of effort I’m making. So how can I, when unable to perform consistently, express that the thing, principle or person is still important?

Can I ever be good enough, do enough, love enough to have it mean something?”

Looking that up was interesting because it really made my point: This theme recurs. It recurs because the question is always relevant in a world that needs us to do our best. It’s not going to stop recurring, and I need to meet it with honesty and humility whenever it arrives.

The Importance of Being Evil

I cannot be a whole person unless I understand and accept that I am partially evil. This understanding took me years of work, and the acceptance of it will probably be a lifelong task. 

The idea that we all have evil is not new, but I am not concerned with that. Nor am I taking on the endless task of defining what exactly evil is and is not. I am only speaking for myself: some of the things I personally define as evil undeniably exist in my psyche. There is some dark crap in there, and it’s not going to go away. Self-improvement and spiritual work can help me improve my behavior, but there are some things that cannot be changed. I will never be pure. 

Why is understanding this so important to me? It’s hard to explain. It’s hard to explain the huge leap in self-acceptance I made when I was able to incorporate these parts of myself into the whole. It’s hard to explain how much closer it makes me feel to the rest of humanity (a feeling of closeness I need, since I so often feel alienated.)

Instead of my self-esteem being based on inherent goodness, I can base it on my behavior. Now I don’t have to feel like an impostor every time an uncharitable thought or angry fantasy comes into my mind. 

I can be angry at people doing bad things and still understand that I am not a different species from them. I can know that however dark and twisted the labyrinth of their actions and motivations might be, it is still a human labyrinth and I have one too. I can understand that I am just as capable of terrible things as anyone else given a different set of circumstances, different brain chemistry, different trauma–even different past life baggage if you’re into that kind of thing. I’m not better than anyone. I am a potential supervillain.

Battling addiction, mental illness and general despair requires a powerful sense of self. Anything that makes me more connected with that sense of self has the potential to save my life and give something to the world. I’d rather be a partially evil person trying to act non-evil than someone whose useless quest to be good helped to kill them.

Not Enough

How often we get stuck not doing anything because we have been taught that whatever we do will not be enough?

I drag myself to a support group meeting. More frequent attendees ask “Where have you been?” I manage to get to a poetry reading. Other poets ask “Too bad you missed yesterday’s event, are you going to make it to tomorrow’s?” I stumble into tai chi. Classmates say “Haven’t seen you for a while, are you coming to the workshop?”

Now, to some people, all of these things might have a very different connotation. These comments might simply mean that these people like me and want to see more of me. But do you think I interpret it that way? No, I interpret it to mean that I am not doing enough, not being enough, not giving enough to that particular community.

It’s easy for me to think that if I compare myself to people who have thrown themselves deeply into one community and seem to devote themselves to it on a daily basis. If I set a standard like that for myself, a standard that fits neither my health nor my current lifestyle nor my devotion to more than one thing, I will always feel deficient. 

If I have the clarity to question my thinking, I see that my feeling of constant deficiency is not fact. I also see that it cannot be fixed by doing more; that I would still manage to find a way to see myself as deficient because the idea is ingrained deeply enough to defy logic.

For me, and for many, many others who are conditioned the same way and surrounded by a culture that continues to encourage the deep belief, the automatic assumption of deficiency is one of the enemies we battle daily. Like our other demons, it is the enemy of creativity and joy. It wants us silent, bound or dead. What it does not want is for us to get up and do something.

Just Sick Enough

When you have a psychiatric diagnosis, there are times when it’s obvious you need help. Other times, it might not be as obvious.

I had to jump through some hoops recently to get seen by a psychiatrist with my new insurance. Among these hoops were multiple rounds of the same questions about the nature and severity of my symptoms.  As I tried to answer as patiently and honestly as possible, I was aware of feeling anxiety about whether I would be deemed “sick enough” to be worthy of care.

You see, although I have been under some form of care for many years, it’s been seven years since the last time I was in a hospital outpatient program and nine years since the last time I was hospitalized outright. I’m only on one relatively benign mood stabilizer.

In recent years, I have been aware of how lucky I am to be where I am. I work hard not to throw this good luck away by falling back into addiction or other self-destructive behavior. But should “doing well” mean I don’t need help any more? Especially with bipolar, where patients are quite likely to float out the door while in a happy place, stop their meds, and wind up in the ER?

So it’s a dance. Be sure to appear “sick enough” to be taken seriously, without appearing so ill that you get a level of intervention you don’t need or want. Be eloquent enough about what goes on in your head to make sure someone knows you aren’t “fixed.”

Why? Why not just have enjoy having fewer appointments and one less thing on your current record? My reason is simple: my condition means that matter how well I am doing, it is possible for me to have a serious episode and need more help. Having a psychiatrist of record means having someone to call for an urgent meds adjustment. In the event of dire need, it means I have a name to give the ER staff.

It’s regrettable that people like me must defend our need to be responsible and prepared for trouble.

The Things I Must Not Write

Some poems, and stories, and essays of mine are not ready to be written because they concern other people too directly. It’s a pity, because I’m sure they would be rich, and dark, and searingly honest. I know some people write memoirs and let the chips fall where they may, but for me it would feel wrong to write really raw stuff specifically about people who are still alive.

Part of my decision is based on fear, I know. The fears many of us have about confronting sources of our deep and sometimes illogical terrors. I’m all about trying to face my fears more often, but I also know my own limits and know that pushing certain things would harm people who don’t have the capacity to deal with it.

I’ve sometimes been advised to write pieces and simply not share them with anyone–don’t read them, don’t submit them, don’t self-publish them. Occasionally I do write some things for a recovery activity or when working with some kind of counselor. In general, though, I feel frustrated at the idea of writing things I am supposed to keep secret.

It doesn’t make sense. Journaling is so highly recommended for creative types; why can’t I get on board with private writing? Is it that I have a hard time giving myself permission to create without some small chance of it enriching others? Or is it just ego?

The Trap Door

An old dating show had prospects standing on a trap door above a dunk tank while being asked questions. At any moment, the contestant asking could push a button and splash! It was all over and the next person would move to stand on the trap door.

I often feel as if I’m in that situation. The feeling grows stronger when I meet and interact with new people, especially if I have a strong desire for those new people to like me and want to see me again. Everyone can have the “If they really knew me, they wouldn’t like me” feelings, but mine tend to center on a few specific things.

For example, yesterday I spent the day with a group of writers at a workshop (an awesome experience, and I am so grateful I was invited despite my lack of funds.) The social part also went well, but I did have one instance of the “trap door” feeling. It happened during lunch when the topic of psych meds came up briefly and several people expressed the common attitude of all psych meds being bullshit and/or evil.

The gears rumbled to life in my head and I began to project. So, if and when they know that I’m someone who chooses to take medication, they will have contempt for me. They’ll decide I am weak, or lazy, or unwilling to face difficult times, or just a compliant sheep controlled by Big Pharma. They’ll write me off. And if they would write me off for this, how quickly will they write me off once they know I am a drug addict in recovery? Should I speak up and tell all of these things about myself as early as possible so they can go ahead and write me off instead of wasting their time?

I felt the trap door opening under my feet. I felt the familiar brick settling onto my chest. I felt the familiar loneliness that tells me “You don’t belong. Don’t get fooled into thinking you could.” 

These moments are part of life for me, and I try not to let them control my actions. I try not to let them trigger defensive counterjudgments or mentally put people into boxes, but it’s hard sometimes. I’m aware that when I do that I am judging people in the same way I don’t want them to judge me.

Poetry…Because Drugs Didn’t Work Out

I used this phrase when meeting my new psychiatrist and got a quizzical look. He’d just asked me what coping mechanisms I use to deal with my symptoms. I’ve used the phrase before with others, or referred to poetry or writing as my “newest vice.” Some people get it right away, some don’t.

It’s like one of my favorite snarky T-shirts, that says “Writing…Because Murder is Wrong.” That one either gets a laugh or a vaguely uncomfortable look.

Poetry, and other writing, are indeed a coping mechanism for me. Doing them is part of my ongoing efforts to break the old patterns that want to keep me silent, ashamed, and stuck. Doing them can help me get through the disorientation or despair of an episode, or at least give me reference points before and after.

Poetry, and all art, is a form of therapy as well as whatever other purposes it has. Some might sneer at those who seem focused on this aspect of it, or draw distinctions between such people and “real” artists. I believe there’s a place for a critical voice in our process, but I also believe there’s a special corner in some hypothetical hell reserved for those whose contempt or elitism discourage creation.

The word therapy comes from the Greek root for to serve. Psychotherapy translates to serving the soul. Whether it’s our soul or others, or what the ratio is, the service exists. When we create something–anything–we influence the world.

Reminders

No matter how well I am doing, I must not forget what I am. No matter how much I am enjoying being a poet, or how invested I am in being a mother, I must not forget the conditions that have the ability to destroy it all if I don’t deal with them as responsibly as I can.

I live with a mental illness, and I’m an addict in recovery. These things become less and less obvious to people as I rack up more years clean and have the good fortune to stay out of the hospital for years as well. But serious mental health crisis always has the potential to happen–and, of course, relapsing back into my addiction would bring all my progress crashing down on myself and my loved ones.

Many of the people I meet these days don’t know about my past. Sometimes I am nervous about if, or when, or how to talk about it. I don’t know to what degree I will encounter stigma. Sometimes I expect, on some level, to be “written off” as a new acquaintance gets to know me. Not that I can’t be written off for many other things about myself, or just for general social awkwardness.

At any rate, my learning and growth have to be balanced with continued maintenance. New adventures have to be undertaken with an honest knowledge of my limitations. Even when I can “pass” for normal, I have to remember and accept that I am not.