No Promises

My life is littered with a trail of broken promises, each one giving me more material to shape into self-loathing. Which ones were fueled by bipolar disorder, which ones by being an addict, and which by simply being a flawed human, I’ll never know. But I’ve learned, the hard way, that my promises need to be small, short-term, and specific. That’s why I don’t do New Year’s resolutions. It’s not that I don’t think setting intentions is a good thing, or that doing so in a spirit of camaraderie with others isn’t helpful. But they aren’t right for me.

So, for 2023, I do not vow to get my first book, or my first two books, published–but for today, I set an intention of doing the next step of cover designer research. I do not vow to lose weight–but for today, I set an intention to eat in a way that doesn’t hurt me. I do not vow to make a little money with my fledgling tarot reading business–but today, I set an intention to participate in my favorite forum. And so forth.

I need to accept that I live in cycles. No matter how many meds I take, my ability to do things–including basic self-care like exercise and eating well–is going to fluctuate. And when I get into shame about that, it only prolongs the down phase, because people who are in shame don’t take good care of themselves even if they can again.

Post-Holiday Rehab

The holidays are over for another year, and I survived. Mostly. My family has been pretty low-key about the holiday season for years, so I have it better than many, but it’s still socializing with the added elements of overthinking and societal pressure to be happy and having a good time.

I made a choice to eat without restriction for about ten days spanning Christmas. Let’s have a show of hands from everyone who believes I’m now pleased with my decision…yep. I am feeling the consequences of my actions. Not in the way a normal person might say, with a bit of chagrin, that they gained weight over the holidays. No. What I’m dealing with is the aftermath of what, eventually, became a full-on compulsive eating episode, because that’s what happens when I continue eating a certain way long enough, and how did I think this time would be any different?

Could I have made it through the holidays without doing what I did? I don’t know. What I’m mad at myself about is not the choice I made but my failure to acknowledge the extent of the consequences I would face; my wishful thinking. If I’d faced up to the implications of what I was doing, maybe I could have sought support to help mitigate the damage or help me come out of it before the most painful and punitive ending binges.

Now I have to heal, and recalibrate my broken metabolism, and accept that it’ll take a long time to repair the damage. It’s day one of the “maybe don’t eat yourself sick” plan–and that’s going to have to do.

The Bipolar Diet

What is dieting success, and who defines the difference between success and failure?

Of all the posts I’ve made on this site, the one garnering the most likes has been my recent post “Soup du Jour” in which I talk about the inconsistency of my eating patterns. Did it strike a chord for people, or was it just that it wandered into a highly populated tag? I suspect the latter.

Whatever the case, eating and weight is always an issue worth discussing for me. People with mental health issues have trouble feeding themselves healthfully and consistently even if they didn’t start off with an eating disorder like I did. I’ve spent decades of my life traveling up and down the scales, eating every diet imaginable. At five feet seven inches, my lowest adult weight (for about ten minutes) was 145. My highest adult weight was 315 pounds. Today, and for about six years now, I maintain a weight in the range of 215 to 235 pounds.

Am I a success for learning to maintain a weight at least 80 pounds lower than my highest? Or am I a failure for being unable to sustainably go even lower? Depends who you ask. Certainly doctors, insurance companies, and clothing designers will never be pleased with me. But if you’ve never been as overweight as I have been, you don’t know what a difference that 80 to 100 pounds makes to my health and mobility. It’s night and day.

If anyone had told 17-year-old, 125-pound me, throwing up her Herbalife supplement after packing her 500-calorie lunch, that she’d one day be grateful to weigh 220 pounds, her head would probably have exploded. It would have exploded again if someone had told her that this future 220-pound woman would experience a level of self-acceptance unimaginable to the desperately thin girl.

Waiting for the Other Shoe

Uh-oh…I feel good today. The side effects of my meds change have died down, and the new med is looking promising. I’m a bit less hypomanic, I’m sleeping a teeny bit better, and my morale is up. Thinking about my writing projects and publishing issues, while still chaotic, doesn’t feel quite as overwhelming.

So, I’m waiting for the proverbial other shoe to drop. I’m waiting for a relative’s health to take an abrupt turn for the worse, or for the dog to start throwing up, or for the nearby oil refinery to have a toxic leak. Because people with brains and/or backgrounds like mine are wired to expect disaster.

That’s one reason I carry a deep conviction that feeling happy is always the precursor to trouble. The other reason has to do with the deep shame I still battle–not the shame over things I’ve done, but the unexplainable shame I seem to have been born with. It tells me that there will always be a price for any happiness I experience; that in taking anything for myself I am stealing it from the world.

All this makes it harder to appreciate days like this, but I try. It’s a gorgeous fall day here in Northern California. We won’t be on fire again for several months, and the air is crisp and fresh. I got five glorious hours of sleep last night. My favorite jeans are clean. So is my hair. And there’s nothing I have to do for the rest of the day. Life is good.

Gratitude. Ugh.

Sometimes I worry that a person in pain will take gratitude-related advice as “suck it up, whiner!” I feel that inappropriately-timed reminders of gratitude’s importance can be condescending, minimize the importance of someone’s pain, and make them feel it’s not safe to express said pain.

That being said…yeah, cultivating gratitude is vital. Ugh. It’s as necessary as air for me, because self-pity was the biggest saboteur of my early attempts at drug abuse recovery and at managing my mental health. I felt sorry for myself when it become clear that recovery wasn’t going to make my brain normal, or let me sleep, or get me to a level of functioning suitable for the kind of work I wanted to do.

Today, it’s helpful for me to at least attempt a gratitude-centered perspective when things are tough. And my past gives me lots of useful fuel. Annoyed that my back hurts after doing dishes? Remember the many times dishes weren’t even an option. Feeling frustrated that I can’t be of more help in my daughter’s health struggles? Remember how close I came to not being there for her at all. Tired or scattered about my writing projects? Remember I could have died without writing anything.

My place is a mess? Got a place to live. Hate cooking? Got food to cook. Getting old? Beats the alternative. I can go on and on–if I’m willing to go there. But does it really do anything? It doesn’t fix everything, that’s for sure. And it won’t help if I try to force it because of a sense of duty or shame…”why am I sad? I should be grateful…”

But if I can let gratitude in, let it coexist with my other perfectly valid emotions, it will help balance my tendency to dwell on the negative. And I can use the help.

Off Switch

How do I get my brain to STOP? When I know it’s tired enough not to be productive, or I know I’m not well enough to be productive anyway, what button do I push that will convince it that it’s OK to relax and not learn or create anything right now?

Well, what button BESIDES drugs, compulsive eating, and other destructive things? For over a decade, I used ever-increasing numbers of sleeping pills because my brain wouldn’t yield to anything less than a chemical hammer. Opioids during the day also soothed my hyperactive brain. A box of donuts is usually good for shutting it up, but eating large amounts of junk comes with a high physical and mental cost.

I know, I know…I should exercise and meditate. Well, my Tai Chi classes finally reopened, so that’s a step in the right direction. But except when I am actually doing it, it doesn’t seem to change much.

Right now, for example, I just stopped in the middle of typing this to grab a piece of paper and write down an idea about how to fix a problem with the video editing I’m trying to learn. I had to remind myself that I’m in the middle of something.

What I really want to do is unplug for the day. It’s Friday afternoon, there’s nowhere I need to go, and I only slept 2 hours last night. I want to zone out and play Minecraft, or put an old, comforting movie on. And my head hurts from the video editing stuff. And I don’t want to think about the different projects I am working on, or how messy the house is, or my latest NEW writing idea. I don’t want to think at all. But the mild hypomania that has been in play more often than usual for the last few months means I spin, and spin, and spin.

Pain We Obey

“To goodness and wisdom we only make promises; pain we obey.”

-Marcel Proust

I was 32 when chronic pain changed my life. I know many people who experience worse suffering than the pain that comes with my cracked vertebra…but when it’s your pain, and you have it all the time, it feels consuming. I know what it’s like not to be present in the moment because I’m counting the minutes until I can lie down and take painkillers. I know what it’s like to plan my days around pain, to quit activities I used to enjoy, and to struggle with the simplest daily tasks.

When it became clear I was an addict with a capital A and needed to go the abstinence route, I felt so sorry for myself. My black-and-white thinking painted the future as an infinite desert of unrelieved pain and bleak depression. It felt unfair. I had to change my attitude a lot to have a chance at staying clean.

When I went to rehab for the last time (well, let’s hope it was the last time) doctors told me that overuse of meds had screwed up my pain processing system to the point that my body was creating and amplifying some of the pain. They said for every year I had used narcotic painkillers, it would take about a month clean to figure out what my true pain level was. I’d used them for eleven years. So the first year of recovery was going to suck pretty badly.

Today, I can say with gratitude that the doctors were right. Though chronic pain is still part of my life, my average pain level is far lower than before I got clean. It gets bad occasionally, but “bad” now is what was normal back then. That’s only my story, of course. I got lucky.

Living with chronic pain, like living with mental illness or being in recovery, opens us to trying things that might not have been on our agenda if life had stayed “normal.” Spiritual exploration. Meditation. Trying to find and do small things that give pleasure. Examining our ideas about what we are if we’re not our jobs or our productivity. All of you who let pain steer you into a quest for growth inspire me: how amazing that we perform, however imperfectly, this mysterious alchemy that turns pain and despair into something beautiful.

Soup du Jour

What’ll it be today? What am I going to eat? When am I going to eat? How am I going to eat?

To live with me is to, periodically, listen to my announcement of which nutritional and/or behavioral hack I have decided to use in my ongoing task of coping with my eating disorder and broken metabolism. To live with me is to notice, at some point, that I’m no longer doing the thing I announced to you a day or week or month ago. To live with me is to listen patiently as, when I get tired enough of things not going well with my eating, I announce my new plan.

I hate it. I despise the fact that I can’t settle on one nice, sensible way of eating and stick to it. Even if it has to be a weird way, I wish I could just pick one and stick with it. There are common threads–for example, being low on carbs is a thing during all but the most fuck-it phases because of my blood sugar issues–but a lot of other things vary.

How low-carb are we talking here? Strict, or more lenient? Am I practicing intermittent fasting? If I am, how extreme? How am I addressing the fact that my body’s satiety signals are pretty much broken, and I therefore need some kind of attention to portion control? Am I using behavioral rules or techniques, such as don’t-read-at-the-table, to help with emotional or mindless eating?

It varies. It varies because I vary. Sometimes I’m capable of certain things, and sometimes I’m not. Sometimes, when things get bad in other ways, being sloppy with food ends up being the least destructive way for me to act out. And, on one level, I’m ok with that. I’m even ok with the fact that all my back-and-forth efforts usually do no more than maintain my weight, because I know that if I weren’t doing my best, I’d be back up at my top weight of nearly 100 pounds above where I am now.

But I hate the inconsistency. I hate the judgment from people who don’t see why I can’t stop the merry-go-round and just eat like a normal person. And, of course, I hate that I can’t just eat like a normal person. Even other people in recovery from eating disorders sometimes judge me for my chaotic relationship with food–surely, if I were doing the emotional work, I wouldn’t flit back and forth like this. I see their point…but it’s the best I can do.

It’s almost as if I have bipolar disorder or something. Oh, wait, I do.

Goldilocks

I have come to the conclusion that Goldilocks is not an addict.

It’s not that she is without issues, most notably a lack of respect for others’ personal boundaries. But her behavior is clearly abnormal when considered from an addict’s perspective.

Come on–she samples two bowls of porridge and finds the third one to be “just right.” She eats it. Satisfied, she goes and finds a nice place to take a nap.

What’s wrong with her? Why isn’t she rummaging through the bears’ kitchen, trying to find more of that perfect stuff? Or trying to mix the hot and cold porridge to capture that “just right” again? Or just gulping down the too-hot and too-cold porridge, because it’s better than nothing? How is it possible that she is moving on?

After decades of living with an eating disorder, I know how to eat in a way that my body and brain like. I’ve learned, the hard way, that starving myself sets me up for an inevitable compensating binge. I’ve learned, through much trial and error, which foods trigger cravings and are best avoided. I’ve learned not to deprive my body of fats and other things I used to be trained to withhold. When I eat the right way for me, I feel stronger, calmer, and in less pain. I don’t obsess about food between meals. My body and mind send me messages amounting to “About time, dumbass!”

There’s just one problem–I’m nothing like Goldilocks. The concept of moderation, of just right, of enough...my addict brain squirms in discomfort. No quick gratification from weight loss? No resolutions to starve virtuously after the latest episode of binge eating? No “tomorrow will be different?” Weird.

Embracing the reality of my eating disorder, and the need to deal with it even while other conditions might seem more urgent, is a balancing act I will never master. This process will never end, only ebb and flow. And I have to love myself anyway. Weird.

La La La La I’m Not Listening…

“Don’t believe everything you think,” goes the saying. There’s a constant negative monologue in my head, competing with and trying to drown out anything positive I generate, and when I’m in a depressive dip it gets fucking LOUD. I want to stick my fingers in my ears and hope it gets tired and shuts up. But that doesn’t work. Trying to artificially pump up positive thoughts doesn’t work either. Trying to debate or fight the dark feelings just fuels them because now they’re getting more attention. I have to coexist with the voices, not fight them, not try too hard to distract myself from them…but, somehow, not believe them.

When I was studying counseling, one of my favorite professors told a story about a schizophrenic client who believed he lived on the moon. The professor, then a young therapist, tried the techniques he had been taught to challenge and question the client’s delusion. But all this did was reinforce the client’s resistance. One day, tired and discouraged, the therapist went a different direction. He decided, just for the day, that he would not try to convince the client of anything. Instead, he asked, “What’s it like to live on the moon?”

And for many sessions to come, he listened to the client’s stories about living on the moon. As the client came to trust him more, the therapist was able to tie some of the stories to what was happening in the real world and engage on that level some of the time. But he had let go of the idea that it was his job to convince the man to give up his reality for a more approved one.

I have to be like that therapist. I have to sit in a room with the dark version of reality my mind generates and allow it to be itself…but maintain a certain detachment from it. It isn’t me. There’s an entire universe outside of that metaphorical room, full of light and dark, too complex for words.

Diagnose Me

There’s someone in my life who is starting to dig deeper into their neurodivergence. Whatever diagnosis might fit–adult ADHD, bipolar II, something else–they want it. They want it so they can try associated treatments that haven’t been available to them before. They want new items to add to the list of things that might help them, a list that is all they have to cling to on some hard days. They want to get at what might be standing in the way of doing what they need to do to improve their other conditions.

When I was taking psychopharmacology in grad school, many of my fellow students had a lot of negative feelings about diagnosis in mental health. They didn’t like the idea of putting people into boxes. They felt certain diagnoses were given too freely and caused more harm than good. And both of these things are valid concerns.

But here’s my own experience–the right diagnosis was life-changing for me. Until I was diagnosed with bipolar II, I spent more than a decade being treated with medicines that were ineffective at best and dangerous at worst (for example, many antidepressants have unfortunate effects on a bipolar person). After being diagnosed, I started to be treated with medicines that, while they didn’t fix everything, were far more on target. Having the diagnosis also gave me a language for the things I had been experiencing and made them a little less scary. It validated what I’d been going through and gave more opportunities to seek new methods of treatment. It empowered me.

I hope this new seeker finds a way to get the screenings and evaluation they need (no easy task, these days, if you aren’t rich). I celebrate the insight they’ve reached about themselves and their desire to address it. And I pray that diagnosis will be a useful tool for them; one that opens doors.

Brick and Acid

There’s a huge brick sitting on my chest. My stomach feels as if it’s trying to eat itself. I jump at the slightest sound. The cause: my dog has been sick. Nothing too catastrophic, it seems, since she is better than yesterday. We just came back from the vet where they drew some blood for tests.

Anyone would be anxious when their beloved pet is ill–but my spouse, unlike me, has been sleeping at night. He seems to be able to draw a deep breath. I’m obsessively listening for every tiny sound the dog makes, at every hour of the day and most hours of the night. I did catch two hours of sleep last night, and I am grateful for that much.

My limbic system, the part of the nervous system responsible for sensing and reacting to threats, is hypersensitive. It always has been, and it got worse when the bipolar disorder came along. Abusing drugs that relaxed me, and thus neglecting to exercise the parts of my psyche that manage anxiety, probably didn’t help either.

The crisis is over for the time being. She’s feeling better and eating again. But tell my limbic system that…I know that tonight, and probably several nights after that, will have me straining my ears for the tiniest clue, the tiniest sound that might mean she’s throwing up or having trouble breathing or being abducted by aliens. And my sleep debt, already large this last week, will grow and grow.

I hear my poet and writer friends talk about serious stresses going on in their lives, and I wonder how they manage to write through it…how do they focus on anything else when the brick is pressing so hard and the acid is so sharp?

Acting My Age?

As I progress through middle age, I’m going through the emotional adjustments everyone does. In my case, it plays out in my writing experience (Aaah, too little too late, no one your age can be a success at writing, the writers you know have been doing it for 25 years, etc.) and several other arenas. Some feelings are sharpened and complicated by my years of illness and addiction, such as when I envy others my age who never became disabled and therefore have more financial security. And some feelings are just garden-variety internalized ageism.

Case in point: my hair. I’m getting it cut short today. I’ve had it long for years, but the already fine strands have become thinner and finer with middle age. It won’t stay in a scrunchy or barrette; individual strands are always escaping and tickling my nose. I can’t wait to get rid of it and have a neater, low maintenance look. So what’s the problem? Nothing, really, just old stuff.

Somewhere–don’t know where–I got a message that long hair is a. more youthful and b. more feminine. What’s up with that? And I never think that about my female friends with short hair, only about myself. There’s a tiny part of my brain that feels as if getting my hair cut off is a kind of desexualization. Maybe it’s remembering a certain drastic haircut I gave myself in my freshman year of college, when I hacked off my long hair while upset after a housemate told me I looked like a tramp. Hmmm.

I din’t have any answers about this; it’s just interesting to examine attitudes I didn’t realize were lurking in there. It’s a good reminder that not everything I go through is about mental illness, or addiction, or even the ups and downs of being creative…I still get to participate in all the general human stuff, including growing old. And that, considering the alternative I came so close to, is a privilege.

MacBeth Shall Sleep No More

Shakespeare characters suck at sleeping, just like me. Hamlet wanders around the castle and sees ghosts. Henry V soliloquizes about how lucky peasants are to labor all day because they can sleep soundly at night. MacBeth, when talking about his murder-induced guilt, focuses on the fact that he’ll never again know peaceful sleep.

They all know the loneliness of being awake while the world sleeps around you. The worry of knowing you’ll be too tired to function in the morning and knowing you must. The pain and fatigue and vague nausea all the next day. Trying not to wake up those nearby while wishing they would wake up and keep you company; telling them to go back to sleep and resenting that they can.

For thirteen years now, I’ve had a pretty intractable case of insomnia. During my years of drug abuse, I used ever-increasing amounts of sedatives and hypnotics to cudgel my brain into sleep, only to have them stop working as I developed tolerance. The longest I’ve ever gone without any sleep at all is six days, a bipolar episode that ended in the hospital. Normally, I would drop off sometime between 3 a.m. and dawn, often to the soothing first chirping of the birds, only to be awakened by my alarm one to three hours later. It made my other issues worse; not surprising, considering the effects of sleep deprivation on everything from mood to pain threshold to executive function.

It was awful, all right…but what a bonanza of self-pity for an addict! I always had a plausible excuse for retreating to my room and skipping something I didn’t want to do. “Sorry, the sleep deprivation’s crossed a line and my survival requires a nap.” It was useful to the side of me that wanted no part of responsibilities that would get in the way of taking painkillers.

Fast forward to recovery, and needing to abstain from all the meds I used to abuse: I had to work at changing my attitude about sleep; I had to become willing to stay clean even if it meant I’d never sleep through the night again. I had to accept that I’m not in charge of how much sleep I get, and that I’ll get just enough when I need it badly enough. It meant practicing acceptance when lack of sleep interferes with my energy or mood. It meant letting go of any question of fairness about it all.

Of course, I fail at these enlightened principles. Often. I want to snarl at people who give advice on how to sleep…yeah, thanks, I haven’t tried your sleep hygiene tip any time during the last decade and a half of suffering. I have to guard my mind against the human, understandable, but very dangerous thought: “I really need one night of sleep. Just one night. I’d feel so much better. I haven’t taken sleeping pills in years now, so one would probably work really well. No one would have to know…”

But I don’t need “one night of sleep.” Not at the price I’d end up paying.

Eating Disorders Have Weird Rules

Yes, lest those who read my stuff ever forget: I’ve lived with an eating disorder since I was thirteen or so. It coexists with my mental health issues and with my life as an addict in recovery. It’s there to a greater or lesser extent every day of my life.

I’ve been blessed in recent years with being able to take better care of my body in some ways. Many days are relatively free of compulsions, many other days are moderate, but a few still take me back to the worst days.

A couple of days ago, I felt myself teetering close to a binge and didn’t want to go there, so I tried to do some “harm reduction.” At the grocery store, I bought a couple boxes of artificially-sweetened treats (yuck) to bribe myself out of buying other things.

So there I am, yesterday, with a terrible stomachache from the treats my body is not liking. I decide, disgusted, that I don’t want them around any more. I don’t want them around tomorrow, because if they are around tomorrow, I will eat them and have another stomachache and feel like crap all day.

This where the awful rules kick in. You see, I am not allowed to throw the treats away. No. I bought them, I made that choice, and now I have to pay for it. If I don’t want them around tomorrow, there is only one allowable way to get rid of them. I have to eat them. All of them. Tonight.

I hate the rules.

Interrupted

I’ve been feeling overwhelmed by how far my two book projects have progressed…well, the universe found a cure for that! For two weeks, I’ve been flattened by a flare-up of my old back issues. On bad days I shuffle, stagger or crawl from bed to bathroom to recliner. My creativity is blotted out by pain and worse insomnia than usual. It’s frustrating as hell not to be able to do the dishes, take out the garbage, or even pick up things I drop.

In my counseling training, I met many folks who were in the field of “somatic psychology;” that is, the study of how the mind’s issues can affect the body. It’s a growing field, full of promise. But, like people in any field, students of this one can go to extremes. It made me crazy when anything from a sneeze to a sprained ankle caused classmates to start diagnosing some kind of emotional source.

That being said, mind/body connections are real…so am I somehow the author of this flare-up? Is there more going on than “shit happens?” Did my body arrange for me to be forced to take a break, to put everything on hold, to step away from all the “what now” questions about my manuscripts? All I can do is try to engage my thoughts with honesty as I heal from this.

Whether they are related or not, my mind and body both need to know that they don’t have to break down to get a break. Fallow periods are normal for any creative person. I’m allowed to have them without a physical or mental crisis existing as a reason.

F Is For “Fuck It”

The ultimate metamorph, the “fuck it” feeling can be good or bad, destructive or liberating. It can be the moment of casting aside recovery efforts and popping a pill, or the moment of turning away from a useless argument to direct your efforts to more important things.

Recklessness. Apathy. Liberation. Anger. Dismissal. Rejection. Exasperation. Spontaneity. It can mean any of them. And any of its meanings could be playing out in a healthful or unhealthful way.

“Fuck it” is not appropriate when faced with politics…but it’s appropriate when looking at the hundredth headline about the same thing when what you really need is sleep.

“Fuck it” is not appropriate when faced with a difficult relationship…but it is when the same specific argument has happened a hundred times and you have to start looking for a solution that doesn’t involve convincing the other person you’re right.

“Fuck it” isn’t useful when it comes to your health…but it is when you hear the same outdated lecture from your doctor for the hundredth time after they’ve forgotten your logical response to it for the hundredth time.

“Fuck it” isn’t good as a general approach to parenting…but it makes a lot of sense when your kid’s finally dressed for preschool, except they insist on wearing their rain boots on a sunny day, and it was time to leave five minutes ago, and it’s just not worth it.

We need the “fuck it” feeling or it would be hard to let go of anything. Oh, there are more serene ways to let go–but they require a level of confidence and self-acceptance that few of us can sustain all the time. Whatever emotion comes with of “fuck it” helps shut up that voice telling us we can’t stop until it’s solved; until we win.

Timelessness

Today is Monday. This has been a public service announcement.

I’m in shock that it is November. My impressions of the last months are separated not by date but by vague phases of no-fires, fires, no-fires, election, and dark, all silhouetted against the pandemic.

For those like me who don’t have structured employment, this timelessness can be a hazard. “Make a schedule,” advice articles say. Yes, I’ll get right on that as soon as I master basic self-care and achieve some sort of consistent energy level.

I am lucky I don’t live alone, or it would be worse. My spouse, who is working from home, gives a few clues—if I do not hear his voice on the constant remote meetings he endures, it must be the weekend.

I have other clues as well. If I’m logging in to my writing group, it must be Friday. If I’m logging in to a certain support group meeting, it’s Tuesday. But there’s still a feeling of timelessness.

Five Minutes

I just sat down and wrote a list of five-minute activities. It felt pretty cheesy, but I need to find the willingness to pick one when I feel adrift instead of turning to eating or video games.

As I’ve written before, I’m fine with video games to a point. And I know where that point is; I’m not getting any fun or relaxation out of the game if I pass it. So unless I’m in near-crisis and just have to buy time, it is better to get up and do something else.

Why five minutes? It’s an attempt to break through the block that says something’s only worth doing if I’m going to go the whole nine yards. A walk has to be a long one, scrubbing a toilet has to involve cleaning the whole bathroom, etc. This perfectionism feeds into the “well, I’m not feeling up to all that, so I’ll wait for a time when I am.”

I’ve been ignoring my physical therapy exercises for a hip pain. The whole routine takes a half hour twice a day and feels as far from me as the moon. But wouldn’t it be better to do a few of the stretches than nothing?

Nonzero is always, always better than zero for me. Staring disgustedly at a poem draft for five minutes is light-years ahead of not bringing it before my eyes at all.

Passing for Normal

I felt normal today because I got to drink coffee from my favorite place, something I haven’t done since February. There were tables very far apart, so I sat drinking and feeling a breeze on the lower part of my face. Such a normal thing that I’ve missed a lot. It made me think of other times I’ve felt normal, or—more likely—just felt as if I looked normal.

I remember passing for thin. Around 2013, I was at the tail end of a very low-calorie diet that took my weight down close to “ideal.” I took a ballroom dance class but never lost the feeling of being an imposter. The body I had, even as it moved while held in someone’s arms, felt like an illusion tricking them.

I remember passing for normal as a mom, mostly when my daughter was little and I’d sit in the park exchanging innocuous facts with other mothers while laughing at toddler antics. Although I was far, far from okay on the inside, the outside looked wholesome.

I remember passing for a normal person at a ball game. The SF Giants were in the playoffs and I was in the stands with my spouse and daughter. I wore an old orange Giants T-shirt of his. I was in orange, just like everyone else. I felt happy to be part of the crowd.

And oh, God, I remember passing for normal at jobs, back when I could. Wearing an ID badge, nodding at meetings, writing up notes. Helping others. Looking competent and adult between my secret anxiety-attack bathroom breaks.

Are They All Right?

I can’t stop thinking about people from my past. Wondering if they’re okay, what they are doing, how they are dealing with the pandemic. Whether they live alone or with others, whether they’re working. Do they have enough money, how is their health, how are they coping spiritually?

I can reach out to some, if I get up the nerve. “Hey, it’s me, I know we drifted apart decades ago, but how’s it going?” People would understand even if they think it’s weird. These are weird times, after all.

But in a few cases, I can’t for fear of harming the person by bringing up memories that might disrupt their current life. The most painful case is an ex-partner from my mid-twenties. There’s a lot I would like to say to him and a lot I’d like to apologize for, but I’ve never tried because I don’t want to risk negative consequences for him. But I miss him, almost three decades later.

Thoughts of him normally come and go, but they’re so strong now. I don’t know whether he’s married or has kids, if he has a job, if he is struggling to care for an elderly parent…I know nothing. He could be sick. He could be dead.

Over the years, I’ve often pushed away the thought of hiring a PI or paying a website to get just a few pieces of information without him knowing. Just enough for me to know whether he’s within reach of OK. But it feels unethical.

I know I’m probably not alone. I hope other people are braver than me, and free from reasons to hold back.

Yes, I Play Animal Crossing

I admit it—my daughter and I both find comfort in video games right now. I know a great many people, especially creative ones, who look down on those who play. I know there are valid issues surrounding the effect of both games and other media on the human brain.

That being said, I find video games good for anxiety management. There are times I can’t focus on writing, or wholesome leisure activities like reading poetry. When friends say they’re playing too much during the quarantine, I understand how they feel, but I don’t beat myself up about how long I play.

Animal Crossing: New Horizons came out on the Nintendo Switch console just as the shelter in place was beginning. Because of this, it’s even more popular than it was expected to be. When I can’t sleep, or desperately need something to do with my hands, I’m on my virtual island.

I see it as harm reduction. Sure, gathering pretend resources and building things that aren’t real are not the best thing to do with the times I’m not able to work, but I could be doing worse. I could be relapsing on drugs. I could be overeating and making myself sick. I could be dwelling obsessively on the world’s situation to the point of convincing myself there’s no point in staying clean.

If the worst thing I’m doing is catching fish to sell to a capitalist raccoon, I’ll take it.

What I Deserve

Do I deserve coronavirus?

As the pandemic becomes more real and more obviously not going to go away any time soon, I’ve started to be more afraid of getting sick. I’m lucky enough to be sheltering in place except for trips to the grocery store, and I live in an area where folks are obeying the mask rules. But I have an illogical conviction that I’m going to get sick. Seriously sick.

I know it isn’t illogical to think I’ll be exposed if this goes on long enough. And I’m somewhat vulnerable because of being over fifty and having diabetes. But my odds are still decent for having a less catastrophic illness than my imagination portrays.

When I sat and unpacked this feeling a bit, I realized it comes from the part of me that thinks I deserve to get sick. That I don’t deserve to stay healthy when so many “better” people aren’t.

Survivor’s guilt. I know it. I’ve tasted it often when thinking of my fellow addicts who died, or fellow mental illness sufferers who didn’t make it through a bad episode. Especially when I think about the roles privilege played in my survival—white privilege, education, health insurance, etc. Regardless of how hard I worked, these other presences can’t be ignored.

And there’s no doubt privilege plays into my survival odds in the pandemic as well. Racial and economic inequities are achingly clear. So it makes sense that I’d have these thoughts. But too many of them are dangerous for me because they feed depression and apathy. Self-care is sliding. I’m not going out for walks. Sleep is worse than usual (and usual sucks.)

Writing sucks too. But today I did small revisions on a segment. And I wrote this.

Control, See?

I am desperate for some shred of control over my life, my future, my daughter’s future…control I do not have.

Some can take this desire for control and turn it into concrete action, no matter how small, toward improving the situation.

Sometimes I manage that, especially if I can define writing as a beneficial action. Said definition is of course a matter for ongoing debate. I can also make masks, however inexpertly, or clean, or cook meals for my family.

But as many of us do, I’m also seeking control in other spheres of my life. Spheres not directly related to the big problems; spheres where I can have a feeling of control.

Cue the eating disorder.

I’m hearing it from many sufferers…the stress is driving them to more frequent binges, or to more restrictive behavior if that’s a problem, or both.

I knew I’d never make it through these months staying the same weight. Maintenance is not my strength. I’m either going to gain a lot of weight or lose some. In an effort to choose the latter, I put myself on a stricter regimen a couple of months ago.

It’s helping me avoid binges. I’ve even lost a few pounds. But I’m achingly aware of how I cling to the faint sense of control it gives me. I’m thrilled when I lose a pound; I’m worried and upset when I don’t. In the face of this overwhelming world, my brain dwells on such a trivial thing.

I understand. I know it’s what brains do sometimes. I know I’m not alone. But it’s humbling to watch myself race in a circle, knowing full well why I’m doing it, yet still racing.

Masks

I am sewing masks, the way many people are lately. I don’t sew very well, and I swear like Samuel L. Jackson whenever I stab myself with a pin, which is often.

I am asking myself frequently whether it’s worth the amount of time, frustration and literal blood it takes for me to produce a small fraction of what I see better sewing folks and/or those with more physical and mental stamina are producing.

It has been many years since I approached what I think of as a “normal” level of productivity. Because my disability is mostly invisible (unless you live with me) I struggle with internalized ableism and hold myself to a standard I will never meet.

I know I’m not alone. I know I shouldn’t compare myself to others. But sewing’s the least of it…I pour myself into my writing in little chunks, knowing I’ll never be able to put in the kind of hours, or networking time, or number of events others can.

These feelings are normal for me. They don’t get argued away. I just have to make sure my deeper beliefs coexist with them: Yes, what we do matters. Yes, every little bit helps. Write the book. Write the poem. Make the mask.

When Advice Hurts

I’m coping with some health stuff right now. Nothing worrisome in the long term, but I’m on my third antibiotic since early December. I’m frustrated at the decrease in creativity caused by fatigue and discomfort. That’s not all, though.

I had to cancel a writing group meeting last Friday. Instead of saying anything about the infection, I lied and said I had to go out of town.

Why did I lie? Because I was tired.

I didn’t want the lectures I knew I’d be given if some of them knew I was (a) sick and (b) using Western medicine. Lectures I’ve heard from these folks before.

I didn’t want to hear I wouldn’t have these problems if I were vegan. Or if I took the right supplements. Or did homeopathy.

I didn’t want to hear that all my ills are caused by dairy, or not doing yoga, or my childhood vaccines.

I don’t make any medical decision, including using antibiotics, lightly. I use the knowledge I have (including my degrees in biology) to weigh the data and make my choices. But people seem to see me as some sort of compliant, brainwashed sheep if I choose a treatment a doctor recommends.

Many of these people are kind. They don’t realize they’re hurting me. Not just frustrating and infantilizing me, but hurting me. They don’t realize that when they keep repeating advice, this is the message I receive:

Because you’re making some kind of choice that differs with my opinion, everything you are suffering is your fault. You didn’t get sick; you made yourself sick. You deserve no kindness, only judgment.”

Yes, I get that message loud and clear, whether I should or not. And it makes me feel so fucking alone. Because these are the type of people who also belong to the “all psych meds are evil and you can cure your mental health condition with positive thinking and vegetables” school of thought.

Which means I’ll never, ever be able to please them. Because even if there should come a time when meds don’t need to be in my toolbox, I’ll still be standing firmly on the side of their responsible, case-by-case, nonstigmatized use by others.

Now, if you’ll excuse me, it’s time for the sheep to go take the next dose of her evil antibiotic. Baa.

The Meatball Challenge

Read this whole post, because I need your help with the meatball.

I don’t enjoy the holidays much. There are exceptions (I made it to a party last night and hopefully committed only minor social blunders) but I’m low-key to the point of denial most of the time. Oh, I like getting together with some of my relatives and playing games and having a nice meal, but (just as with Thanksgiving in my country) I don’t like being told that I have to do it on a particular day. Or being bombarded with how much more holiday-related fun other people with more energy and different families seem to be having. Or the endless question “Are you ready for the holidays?”

As if they were a college final exam or something.

At any rate, silly humor helps me when I am stressed, so I turn to the meatball challenge. The way it works is, you take a well-known line from literature or poetry and substitute the word “meatball” at an appropriate place.

“But soft! What light through yonder meatball breaks?”

“O Meatball! My Meatball!”

“Because I could not stop for a meatball, it kindly stopped for me…”

“Quoth the Meatball: Nevermore.”

You get the idea. Why “meatball?” I have no idea. It just works, maybe because it’s so arbitrary and pointless.

Right now I’m trying to do it a bit differently. You see, Christmas carols are one of the few things I enjoy about this time of year. Archaic language, religious references and all, I love that they’re songs a lot of people know. So I’m doing the meatball challenge with holiday song titles. It’s fun, but I’m running out of carols I know. So if anyone can help, please comment a title for me. Maybe even share so I can get more. Thanks in advance.

Joy to the Meatball!

Doing Nothing

My job today is to do nothing. Specifically, my job is to do nothing self-destructive. I hate days like these, where I’m just trying to get back to zero by letting my body and mind recuperate from whatever abuse I inflicted on them recently.

But the days when I’m actually doing the harm are, of course, worse. After nearly a year and a half of grace on my let’s-keep-diabetes-in-remission way of eating, I began to struggle in the spring and have not yet recaptured the blessed place I was in. A week or two of difficult abstinence has tended to be followed by a few days at a time of the hideous and painful rituals of binge eating. Although I haven’t relapsed on drugs, the eating disorder brings plenty of suffering in the form of sickness, shame and secrecy.

Sharing about this is important, because I don’t ever want anyone to get the idea that the work I’ve done on myself has solved anything. It hasn’t. I’ll be dealing with my issues for the rest of my life, just like I’ll be an addict in recovery the rest of my life.

If you think that’s a defeatist attitude, I understand, but I must disagree. Understanding that these things are a part of me and my life, rather than some demon I can exorcise forever if I just get it right, has been vital in acquiring more self-acceptance.

This is only day two back on plan. If and when I rack up a few days and get my mind clearer, I may look at whether to get in touch with my psych team over the general pattern I’m seeing (sleep worse than usual, biting nails until they bleed, anxiety spikes.) It’s the usual dilemma: are my struggles a sign that I need more help with my symptoms, or do I just need tough love and other attitude adjustments?

But today, the goal is nothing. Like the old story of someone who’s deep in a hole crying out to their God, “Please, God, get me out of this pit!” And God replies, “Okay, but I can do it faster if you stop digging!”

I’m not digging today. And that’s going to have to do.

Raw

Don’t you hate it when you bite your nails late at night until they bleed? And tear bits of skin off around the nail beds, exposing raw red flesh? And it hurts, but only for a little bit, and you finally go to sleep. Then you wake up in the morning feeling as if your fingertips have been dipped in acid.

Washing your hands is excruciating. The thought of doing the dishes makes you want to cry. But the dishes don’t care. They sit there waiting. And you don’t live alone, so you can’t just let them pile up. And you think about asking someone else to do them, but you tell yourself you don’t deserve that kind of consideration, because you did this to yourself.

Then you try to put bandaids on all ten fingers so you won’t keep bumping the skinned flesh into things. Then you realize you need to wash your hands.

Then you sit down to work on a poem and can’t stop looking at your stubby, raw, red fingertips moving over the keyboard.

Oh….what’s that you say?

Not everybody does this?

Shit.

Pain 1, Me 0

Chronic pain sucks.

This week I am receiving a reminder of this. I did something to my back 8 days ago; thought it was no big deal at first but it got worse as the week went on. It’s been hurting at the level that used to be going on all the time for me.

I’m spoiled these days; often pain free with occasional flareups. I haven’t had one this bad in four years or more.

So right now I’m being reminded how much pain screws me up–and I’m getting to see how it screws up parts of myself necessary for writing.

One: Pain makes me afraid. I future trip like crazy–what if it doesn’t get better? When can I go back to my regular activities? How am I going to function when sometimes I can barely function without pain? Writing in a state of fear tends to be joyless and stripped of its usual juice.

Two: Pain makes me stupid. Even less sleep than usual, fatigue from stiff muscles; it all leaves me cloudy. Writing is slow and awkward.

Three: Pain triggers bad memories and cravings. Back pain will always be associated with the worst time of my addiction. The physical sensation triggers memories of standing in line, filling out forms, and talking to doctors in order to get more painkillers. Even though I know all that is in the past, my body isn’t sure. Writing is harder because it’s difficult to stay in the present.

Four: Pain ups my level of depression. Understandable. Limited mobility leads to boredom, which makes me more vulnerable to depressive content from my head. Writing is harder because the grayness of depression works against my creativity.

Five, and most dangerous of all: Pain makes me self-absorbed. I regress, as many in chronic pain do, to an ego state where I lose perspective and my pain becomes the center of the universe. Writing is hard because I lose touch with why I write.

I really hope this won’t last much longer. But if it does, I need to remember that the imperfect writing I can do in this state is still approximately ten thousand times better than a blank page. So what if it’s not quite up to my usual standards? That’s what editing is for.

Poetry to the Rescue

Last post, I wrote about being flooded with old memories as a result of nonfiction pieces I am writing. Fortunately, I know one remedy to feeling overwhelmed by a project: Write on something different for a bit. It won’t fix everything, but it helps.

So I took advantage of a little writers’ gathering to focus solely on writing poetry; specifically, the kind of writing that strives to be uninhibited and often leads to brand new drafts of something. Very raw drafts, but a thing exists that did not exist before.

A short project to rest from a long-term project. A project done for simple joy of creativity instead of the more purpose-driven work. And two brand new poems, hurray!

A change, a breath, an infusion of fresh energy. Checking in with the poetry part of myself that has felt a bit neglected for the past month or so.

I don’t know what the difference between a writer and a poet is. Maybe there really is none. But my psyche relates differently to what I think of as my poetry from the way  it does to my prose. Both are vital; neither appreciate neglect.

There’s more work for me to do. I still feel shaky and vulnerable and craving. But I did one positive thing, used one positive coping mechanism. Go me.

The Best Thing I Ever Write

Periodically, I need to remind myself why I am writing. It’s not to get my ego stroked. It’s not for the high I get when performing. It’s not for the thrill of getting published. Those things are all gravy, and it’s easy for me to get drawn in to this exciting subculture and try to do too much. When I do that, it’s easy for me to start judging myself for not having the energy to go to nearly as many events as a lot of poets seem to do.

I am writing because the very best thing I ever write might help someone someday. That’s what started it, and that’s the core to which I return. I want there to come a time, in the dark watches of some wakeful night, when someone picks up something I wrote and it helps them get through until morning.

I will never know what the best thing I ever write is. It might not be what I expect. It might make someone feel less alone, or it might cause them to feel more accepting of some darkness within themselves. It might carry a metaphor that helps someone create their own personal metaphor as a talisman. It might be a piece that I don’t even rate very highly among my body of work.

Returning to this basic idea is even more important as I begin to consider pulling my prose together and morphing it into a longer project. Changes in style and a thousand different ideas about voice and structure try to distract me, but I must not let them.

The Eye Roll

Part of living with bipolar disorder is encountering the Eye Roll from loved ones.

The Eye Roll goes like this: I, currently in an “up” state of mild or moderate hypomania, gush about all of the new things I have decided to do. Classes I have decided to take, new languages I have decided to learn, writing projects I have just decided are awesome and should receive devotion, exercise programs I have decided to start…you get the idea.

These bursts of dedication can happen to anyone; certainly we have all had the experience of starting and abandoning new projects. However, with hypomania they are ALL trying to happen at once. In a single week or less I experience–and babble to my family at length about–all of the above and more.

So the Eye Roll is a normal reaction developed over years, in someone who has watched me start so many new projects only for them to disappear during my next depressive phase (and often, rather than reappear during my next up period, be replaced by my NEW set of great ideas.)

My loved ones want to encourage me in taking actions. They’d rather see me engaged than depressed, so they try not to make the Eye Roll obvious. Nevertheless, it is felt and I have enough self-knowledge to respect it.

The spirit behind it has helped me put some cautions into practice. If an idea or desire recurs over months, during a series of up phases, it may be worth following up. However, if it is brand new, it’s not an idea I should spend significant money on or make any life-altering decisions about.

A little money, well, that might be okay. Buying a new wall calendar to lay out plans, or downloading an app, is no big deal. But it’s NOT the time to buy a treadmill, spend hundreds of dollars on a class, or get a tattoo. I need to wait and see if my wonderful new idea has legs or not.

Useful

How do I maximize my usefulness to others? How do I assess my strengths and weaknesses honestly and make good choices about how hard I should push myself at any given time? How do I repeat this assessment frequently and deal with the self-doubt that tries to make me push myself too hard out of guilt or shame? How do I resist the impulse to apologize constantly for what I am doing and the fact that it’s not enough?

I’ve written on this theme before. I’m sure I will write about it at intervals for the rest of my life. Two years ago I wrote this, in fact:

“I don’t want to live my life as a walking apology, but I also don’t want to become the kind of person who sees no need for regrets about how my condition and/or my shortcomings affect others.

Where is the line; where does a realistic assessment of my condition end and making excuses begin?

Could I be allowed to stop making promises, or even implied promises, that set me up for the inevitable apologies?

There’s no way for anyone else to assess, or even for me to assess reliably, the subjective amount of effort I’m making. So how can I, when unable to perform consistently, express that the thing, principle or person is still important?

Can I ever be good enough, do enough, love enough to have it mean something?”

Looking that up was interesting because it really made my point: This theme recurs. It recurs because the question is always relevant in a world that needs us to do our best. It’s not going to stop recurring, and I need to meet it with honesty and humility whenever it arrives.

Not Enough

How often we get stuck not doing anything because we have been taught that whatever we do will not be enough?

I drag myself to a support group meeting. More frequent attendees ask “Where have you been?” I manage to get to a poetry reading. Other poets ask “Too bad you missed yesterday’s event, are you going to make it to tomorrow’s?” I stumble into tai chi. Classmates say “Haven’t seen you for a while, are you coming to the workshop?”

Now, to some people, all of these things might have a very different connotation. These comments might simply mean that these people like me and want to see more of me. But do you think I interpret it that way? No, I interpret it to mean that I am not doing enough, not being enough, not giving enough to that particular community.

It’s easy for me to think that if I compare myself to people who have thrown themselves deeply into one community and seem to devote themselves to it on a daily basis. If I set a standard like that for myself, a standard that fits neither my health nor my current lifestyle nor my devotion to more than one thing, I will always feel deficient. 

If I have the clarity to question my thinking, I see that my feeling of constant deficiency is not fact. I also see that it cannot be fixed by doing more; that I would still manage to find a way to see myself as deficient because the idea is ingrained deeply enough to defy logic.

For me, and for many, many others who are conditioned the same way and surrounded by a culture that continues to encourage the deep belief, the automatic assumption of deficiency is one of the enemies we battle daily. Like our other demons, it is the enemy of creativity and joy. It wants us silent, bound or dead. What it does not want is for us to get up and do something.

Through the Clouds

I want to believe I’ll be creative for the rest of my life.

I want to believe that if I get very ill I’ll use the time and the change in perspective to write, or at least expand my mind by learning a new language or something. I want to believe that if I die of natural causes at an advanced age, my feeble fingers or quavering voice will still be trying to communicate. I want to believe that my mind is and always will be more powerful than my body.

I want to believe my drive toward thought and clarity can always overcome issues with my body. And there is some truth and merit to the idea; there’s truth in the idea that my mind and soul have a great deal of power. There’s truth in the idea that the battle for clarity is not hopeless and that it’s well worth fighting.

That belief, however, is not always backed up by actual experience. My experience has been that my mind’s activities are linked to the functioning of a physical object known as my brain. This organ, whether I like it or not, is a part of my physical body. It’s affected by every other organ I have. It relies on the contents of my bloodstream for oxygen and nutrients. When my body gets sick, or is affected by hormone fluctuations, or takes a new medicine, my brain gets a different cocktail. There’s a tipping point to these things beyond which it’s very hard to muster enough energy or original thought for any productive act.

The truth is that for someone like me, the state of optimal body and brain function is more like a theoretical norm than an actual one in the sense that there always seems to be something going on. As I age and experience more physical issues and age-related cognitive decline, the clouds may get thicker. This thought scares me quite a bit.

As I often do when I feel fear, I grope for a metaphor. Today it’s astronomy.

Astronomers, as least the old-school or amateur types who must perform their observations from the surface of the Earth, try do their field observations on clear nights. When it is cloudy, they reschedule, because the portable instruments they have may not be powerful enough to get anything useful through the cloud cover.

But what if the climate changed and it was always, or nearly always, overcast? They’d have two choices: give up astronomy or build more powerful instruments (or do all their observations from space, but in this metaphor that seems like a post-death thing and we are looking at this lifetime.)

Even if they began to build better instruments, they’d have to accept that they now get less data for more work. They’d have to decide it was still worth the work and dedication.

I have to accept a similar thing. I have to believe that an effort I make on one of my bad days is still vastly, stupendously superior to doing nothing.

Time’s Up

When you’re an introvert, interacting with others is subject to a clock in your head. At a certain point, a timer gives a gentle chime. “That’s all the time we have,” it says, like a therapist at the end of the fifty minutes.

We can ignore the timer, to a degree, if what we are doing or who we are conversing with is important to us. We pay a price later by having to spend even more recovery time in the social equivalent of the fetal position.

For me, part of my trouble in the past was that I didn’t realize I was an introvert, especially because I can be very interactive at times and don’t fear things like public speaking. I just thought I had bouts of “laziness.” It took me a while to see the pattern of them and understand myself a little better.

I understand now that introversion doesn’t mean what I used to think it meant. It’s not shyness or social awkwardness, although those can sometimes go with it. It has to do with the level of stimulation we can handle and the level of our need to focus within.

Learning to accept myself as an introvert is the same as learning to accept myself as an addict, or a person with mental health issues, or anything else. It’s just what I am, and it has its own advantages and disadvantages. Fairness, or desirability, or how well it fits with my culture and circumstances, is irrelevant.

Different

Thanksgiving Day is over for another year. There’s no big drama in my family during it, but I still tend to find it overwhelming in terms of socializing and food. When I listen to others describe the stress they sometimes feel, the theme of differences stands out.

Sometimes, when interacting in this kind of environment, we become hyperaware of our differences because we feel a pressure to do one of two things with our differences: explain them or minimize them.

Take food, for example. Every year I hear fellow compulsive eaters, or diabetics, or anyone who needs to follow a certain way of eating for their health and well-being, talk about dreading temptation and/or pressure to eat outside their normal plan. They also dread trying to explain or answer questions about why they choose to follow the plan they do, or justify following that plan instead of what someone else recommends.

I’m so used to not eating what others do that I don’t feel too much specific dread about this, but it does highlight my feelings of being set apart from those who can eat “normally.”

Then there are those of us in recovery who cringe at the thought of being around family members who still drink or use other substances. We make judgment calls about what to attend, make survival plans, and generally experience the holiday as a guarded foray through dangerous territory.

Congratulations to all my kindred spirits who have just come through this. May we be kind to ourselves as we use whatever tools we favor to shore up any cracks in our defenses and restore our connection to the way our differences define and evolve us.

The Other Shoe

I’ve been doing something dangerous recently: taking better care of myself.

After a very long downward spiral of diabetes/low thyroid/weight gain/depression feedback loop fun, things have begun to move in the other direction since spring. It began with a desperate, no-holds-barred attempt to bring my blood sugars under control with a change in eating–a change that, surprisingly, worked well. It accelerated when this change, somehow immune to my eating/weight baggage because it was serving the blood glucose meter and not the scale, began to have the side effect of taking off a little weight. It accelerated more when something about what I was doing affected my thyroid and my levels approached normal for the first time in years. My most recent labs are a thing of beauty compared to the values of last year.

So why is this a dangerous thing?

It feels dangerous because a part of my psyche is convinced good things won’t stay. A lot’s been written about the psychology of growing up in a household of substance abuse and/or violence, but you have to be one of us to know the sickening plunge of fear that comes when the unpredictable trouble erupts. Everything seems all right, then the floor drops out from under you and you’re in fight/flight/freeze mode. And because you’re a kid, sometimes the third one is the only available option.

Anyway, that part tends to make itself heard when things are going well. I have an inner conviction that something awful is about to happen, and when something bad does happen it’s taken as a confirmation that I was right.

The more I feel a sense of hope about the improvements in my health, the more convinced I am that some terrible punishment awaits. The resistance I battle every time I write something or do anything else positive is almost palpable. It fuels itself with everything from little symptoms to relatives’ ailments to the news:  “You, or someone you love, or the planet, is going to pay a price for your selfish behavior. It’s only a matter of time.”

Too Little, Too Late

The phrase haunts me. Whenever I find a lump where a lump shouldn’t be, or even have a twinge of pain in an unfamiliar place, the fear comes up. I’m turning into a hypochondriac, and I don’t like it.

It’s not just that I am afraid of dying, although I am. It’s that part of me is still waiting for a judgment from the universe–a judgment saying I’ve had enough second chances. A judgment saying my current efforts are too little, too late.

I recently spent time with a fellow addict who is on dialysis. For three years, she tried to quit smoking in order to get on the list for a kidney transplant and could not do it. She finally succeeded—two months before a heart complication showed up and derailed the whole process. Too little, too late.

My blood sugars are lower than they’ve been in a long time–but with every exam I fear the onset of some complication born during the less controlled times. My weight is improving slowly from the place it reached last year–but with every sore knee or backache I fear that I’ll never dance again.

It all feeds into the roar from the ever-present peanut gallery that observes my efforts at writing: You’re too old! It’s too late! There’s not enough time left to accomplish anything that is worth doing!