I is for Inconsistency

Case in point: how many days/letters I just skipped. This is a fact of life. Anything I start has a good chance of not getting completed the way I or others envision it. I have to either abandon a project or be willing to come back to it humbly, again and again if necessary, owning my past neglect and trying not to make excuses for it.

We all have to do it. We tackle our horrific bathroom, chiding ourselves for letting it get this bad. We try to save a dying plant, knowing it wouldn’t be dying if we’d been more diligent about its care in the past. We start exercising again, bemoaning the body that would be so much stronger if we hadn’t stopped.

Yes, we all do it. But when I’m coming out of a depressive dip–or a series of them with some good old procrastination in between–it’s a big barrier to get over. It’s bad enough when it’s a chore, or paperwork, or my health, but it’s worse when it’s relationships I neglected.

This is a topic I’ve written about before and will probably write about for the rest of my life: finding the balance between appropriate remorse and destructive shame. Not being someone who saunters around saying, “Well, this is just how I am!” but also not hiding away from the world and refusing to give what I can.

F Is For “Fuck It”

The ultimate metamorph, the “fuck it” feeling can be good or bad, destructive or liberating. It can be the moment of casting aside recovery efforts and popping a pill, or the moment of turning away from a useless argument to direct your efforts to more important things.

Recklessness. Apathy. Liberation. Anger. Dismissal. Rejection. Exasperation. Spontaneity. It can mean any of them. And any of its meanings could be playing out in a healthful or unhealthful way.

“Fuck it” is not appropriate when faced with politics…but it’s appropriate when looking at the hundredth headline about the same thing when what you really need is sleep.

“Fuck it” is not appropriate when faced with a difficult relationship…but it is when the same specific argument has happened a hundred times and you have to start looking for a solution that doesn’t involve convincing the other person you’re right.

“Fuck it” isn’t useful when it comes to your health…but it is when you hear the same outdated lecture from your doctor for the hundredth time after they’ve forgotten your logical response to it for the hundredth time.

“Fuck it” isn’t good as a general approach to parenting…but it makes a lot of sense when your kid’s finally dressed for preschool, except they insist on wearing their rain boots on a sunny day, and it was time to leave five minutes ago, and it’s just not worth it.

We need the “fuck it” feeling or it would be hard to let go of anything. Oh, there are more serene ways to let go–but they require a level of confidence and self-acceptance that few of us can sustain all the time. Whatever emotion comes with of “fuck it” helps shut up that voice telling us we can’t stop until it’s solved; until we win.

E Is For Elephant in the Room

You know the one. Someone brings up the topic of addiction, or mental illness, or meds…and suddenly the elephant is there, pointing its trunk right at you, and there’s an awkward pause in the conversation. Or maybe you’re watching a movie with friends, and the plot introduces something to do with the condition(s) you have, and you feel tension in the room as others wonder how you’re reacting and you wonder whether the fictional character is changing the way they see you. Or you’re at a support group meeting and someone’s sharing about the horrible things Person with Condition X has done to them and people who know you flick their eyes towards you and away and you’re there thinking, “Well, Person with X sounds to me like a total asshole who just happens to have Condition X.”

I’m only one of many who experience this kind of thing. An even more pervasive version is experienced by a Black woman I know who finds it incredibly frustrating to be the only person of color at a gathering because people see her as a “representative” and expect her to react to and weigh in on any remotely race-related topic. She can’t just be in the group as herself.

Sometimes the elephant is present when people know just a little about me and what I have. They’re curious to know more, but they’re uncomfortable about asking. Every decision point makes them unsure whether they will offend. Meanwhile, every misconception they’ve absorbed in their earlier life is coloring how they see me and their judgment of whether I’m a safe person to invite closer.

So when my book is polished a bit more, can I just carry it around and force every new acquaintance to read it? Unfortunately, I don’t think it works that way.

D Is For Despair

Sometimes despair looks like roses.

It did for me, one day in 2011, when I looked at the roses in my yard for what I thought would be the last time as I prepared to leave and carry out my plan for suicide. (Spoiler alert, I didn’t go through with it.)

Despair looks different on everyone. It can look like slumping on a couch, surrounded by paraphernalia of one’s substances of choice, staring into the distance. It can look like careening through one destructive relationship or hookup after another. It can look like sitting at a computer all night, whether working or gaming, not wanting to see the external world or another person’s face. It can look like a perfectly normal life and come through in nothing but occasional body language cues and microexpressions.

One person’s hallmarks of despair might not indicate despair on another person. They might just be in a fallow period, or a mentally hyperactive period, or be acting out a bit following a breakup.

How is despair different from depression, or grief? I think it’s different because it’s more than a set of phenomena like symptoms, emotions, or behaviors. Despair is any or all of those things grown into a worldview; a set of beliefs. Beliefs about what life is, what possibilities do and don’t exist, and the worth of one’s own self and experiences.

If emotions are weather, despair is geographical change. Sometimes it sets in abruptly, like an earthquake, but more often its effects are slow and insidious. And sometimes it lifts or alters abruptly, with a change in circumstances, but it can also recede as subtly as it came.

That’s what it was like for me. The return of hope was so quiet, so gradual, that it was a shock when I realized it was there.

B Is For Brain

Does changing my brain mean changing who I am?

I believe in some type of consciousness that surpasses matter. But in everyday life my emotions, thinking ability, and creativity are profoundly influenced by the physical qualities of the lump of soggy goo that lives inside my skull. It requires fuel. It responds to its chemical environment. When I get sick, it loses function. When I took drugs, it responded to that. And when that lump of soggy goo developed bipolar disorder, it changed my life on so many levels I can’t imagine a hypothetical self without it now.

There’s a novel in which the protagonist, an old man, gets his brain transplanted into the body of a young, beautiful woman. He had his original brain and all its memories, but that brain was now bathed in a different chemical soup. The author chose to have the character, a heterosexual man in his old body, become bisexual with a strong preference towards men. The explanation given was twofold: a bond with the previous owner of the body, and the influence of female hormones.

Do I think that explanation is realistic? No, and I think some of the author’s attitudes about gender are quite dated, but it is food for thought. How much of our sexuality, for example, lies in the body, how much in the brain, and how much in a mysterious entity that is neither? Extrapolating, how much of my very identity lies in each?

I don’t mean to define myself by a diagnosis in a self-defeating manner, nor do I mean to discount the role of attitude and insight in my quality of life. I’m simply saying that understanding that I’m coping with a certain kind of brain can help me structure and create a life that suits it as well as possible. I know there’s a huge amount I can do to influence it–but I’m still starting with my individual lump of soggy goo.

A Is For Acceptance

I used to think acceptance was the coward’s way out. It would be wrong for me to accept my conditions or their limitations, because that would mean I was giving up instead of fighting, fighting all the time, fighting to create a “normal” life like all the inspirational stories out there tell us a disabled person is supposed to do.

The culture I live in glorifies fighting. When a person develops cancer, their process is framed as a battle. Their perceived job is to fight–and if the cancer proves to be terminal, the battle is lost. Death is framed as a failure. For millions like me, life with compromises is seen as a failure. Accepting that I cannot work full-time, or spend too long in certain environments, means stepping away from the meritocracy and accepting a role of someone who’s not in the race.

Settling into a regimen of care that doesn’t fix everything but has been sustainable for years is seen as a failure. I’m supposed to be trying things, constantly seeking alternative treatments, and spending my life in an endless search for a cure instead of living it.

Of course, there’s a balance needed between accepting and fighting. There are many battles to fight every day. If a heavy depression has kept me from washing my hair for days, accepting my greasy locks and itchy scalp isn’t the best choice. Better to fight the inertia, if I can, and drag myself to the shower. Ditto for hundreds of other arenas where I take on my demons to win the prize of some meaningful action.

But accepting myself, in general–accepting that I have the life I do–is key, no matter what it costs.

No Help To Be Had

This morning I made calls to ten more therapists whose names were given to me by the network my health care plan referred me to because they have no more capacity. I have now contacted about fifty therapists and found no openings in a process that has lasted six months. Even before that, my visits had been dropped to one every six weeks.

The pandemic has ripped the band-aid from several wounds in our society, and I hope this is one of them. There is something fundamentally wrong about mental health care for the non-wealthy; it has been wrong for a while, but this is a tipping point. The ERs are going to be flooded more than they already are–mental health ER visits have increased markedly in many areas.

California’s process for licensure as an MFT or social worker is one of the longest and hardest in the nation, and structured in a way that makes it nearly impossible to achieve working part time because if you don’t finish in six years they make you start over. Counselor trainees, and anyone not working in out-of-pocket private practice, are overworked to the point of breakdowns. Usually, their one goal is to get into private practice and escape their hell.

What is the answer? Peer counseling? A lower-level licensure to work with clients who mostly need coaching and someone to listen? What the hell do we do about this? I want to help, but licensure has been off the table for a while because I can only work part-time. I know I could do useful counseling, if there was a framework to do so. But there isn’t.

Grief Time Warp

My sister died a month ago. It seems like a very long time, but it also feels as if it happened yesterday.

Grief makes time do strange things. So does depression. So does mania, for that matter. All of these things make our already subjective sense of time much more subjective. But there’s another way grief changes time–you get caught in memories.

I’ve always been resistant to talking about my childhood. Even when I tell my story to a group of fellow addicts or some other group, I act as if I sprang into being as a teenager. “My childhood was better than some, and worse than others,” is the most I will say before moving on.

But I did have a childhood, and my sister was part of it, as were her conflicts with other family members. When she left home to join the military, it affected us all. When her addiction developed and she began to go in and out of destructive behavior, that affected everyone too. When I developed an eating disorder, I looked to her as an example when she was doing the recovery thing. When I myself became a drug addict decades later, I felt even closer to her no matter how little we were talking.

This month has been hard. Not just because I’m sad, but because her death has ripped off the band-aids on all sorts of toxic family stuff. But I am called to strength now. I need to bring passion to my recovery work, because the addiction that slowly destroyed her body still wants mine. After nine years clean, it still waits, and watches, ready to catch me if I fall into self-pity or run too far away from my feelings.

Splat

It happens so quickly. One moment, I’m me. I’m dealing with symptoms, but have a decent sense of self at the center of it all. Then a question comes up. Someone wants to know if I’m up to doing an optional, often recreational, thing. It might be as simple as watching a certain movie. But I freeze.

Am I up to it? Is my brain able to cope with whatever the thing is at the moment? I stare at my questioner like a deer in headlights as my brain whirls. What’s worse, to turn the person down or to try the thing and have it not work out? I think about all the reasons I should say yes; all the times I’ve had to say no in the past…and as I struggle to find words, I’m plastered against a wall of shame like a bug on a windshield.

Still staring at the person who waits for a reply, I’m consumed with hatred for the cycle of apologies that shapes my days. I despise that the necessity for some apologies remains, no matter how well I take care of myself or how much I grow in self-acceptance. I go through a miniature version of the anger and shame I felt when I was first diagnosed, or when I first realized my condition wasn’t going to let me do certain jobs.

At last I answer the question. But whatever my answer is, my mini-crisis churns inside me and tries to taint my experience.

Why Am I Surprised?

I know how this works. I’m hypomanic for a while. I get all sorts of great ideas for projects. I even work on some of them. My mind whirls with possibilities…then comes the crash.

Then come the nights of less and less sleep as the exciting part of hypomania turns into a complete inability to focus on one thought for amy length of time. Then the disorientation. Then the onset of a depressive phase.

I know how this works. So why is a tiny part of me still taken aback when it happens? Why am I surprised that now my mind is sluggish, or that I react to questions with a “deer in headlights” expression? Why am I surprised that the happy projects of a few days ago seem as far away as the moon and just as unattainable?

Why can’t I accept that I, in effect, have lost a good part of my intelligence for a few days? That I’m going to be physically clumsy and have to take care not to fall and hurt myself?

No matter how much acceptance I achieve, there’s a part of me that fights. I don’t want to be like this. I don’t want to slog through the days ahead and wait for the spark to return. I don’t want to be spending way too long writing this post because of the constant typos my fumbling fingers are making.

I don’t want it, but that’s the way it is.

Sidelines

Yesterday, I heard an opinion that those like me who live with mental illness won’t suffer as badly during the pandemic as those who are used to being happy and productive.

The logic goes like this: we’re used to feeling bad, we’re used to sitting on the sidelines and not being able to do much, so how is this different?

I didn’t know how to react when I heard this. I wanted to talk about what it’s like to be seen as a constant liability to the world. I wanted to point out that right now a lot of mentally ill people are trying extra hard not to be a burden on an overloaded system. When their symptoms torment them, the knowledge of the crisis feeds their shame and lowers their resistance to judgment and stigma.

There is no time to be mentally ill while the world burns, the thought repeats. So what if they’ve run out of their meds, or if the only thing keeping them going was that therapist they can’t go see now.

They will not ask for help. They will try to cope as best they can. Some will fail to make it through.

Sick Squared

Being sick is depressing, sure. For me, though, being sick is clinically depressing.

Maybe those of us with mental health issues are more sensitive than usual to the tiniest changes in our brain chemistry. If we’re on meds, maybe illness changes the way our bodies metabolize them. Whatever the reason may be, even a minor illness seems to guarantee a sharp depressive dip for me.

It was just a bad cold, for heaven’s sake. Severe congestion, touch of fever, no huge deal, only lasted three days…but I’m clawing my way out of leftover mental fog, compulsively pessimistic thinking, and hair-trigger anxiety.

Yesterday was the first day I actually thought about my writing projects again, and it wasn’t pretty. Every gloomy, nihilistic, they’re-no-good-and-even-if-they-were-it-wouldn’t-matter thought I’ve had about them came cascading down at once.

I know what to do; what I’ve had to do thousands of times. Baby steps. Little things like this. Do not try to tackle everything that has piled up, or I’ll end up crawling back under the covers.

I want my brain back to its best functioning now–but what I’ve got is a blog post and a sink full of clean dishes. And that’s probably it for today.

Inspiration or Hypomania?

Both of them present the same way: I have an idea. An amazing idea. The best idea I’ve had in a long time. My head begins to whirl with plans for executing it, alternative plans, and alternatives to the alternatives. I sleep even less than usual because the ideas keep chasing themselves around in my head.

Eventually, one of two things happens: If it’s just inspiration, I question it obsessively, but (hopefully) eventually overcome procrastination and insecurity to take some step toward carrying it out. If it’s hypomania (a symptom of my condition, Bipolar II) I just whirl and whirl until I eventually burn out and crash. After I come back from whatever self-destructive crap I might have done while crashing, the idea seems ridiculous or lackluster.

But what if it’s not either-or? What if it’s a little of both?

The large-scale planning of my book continues. It’s reached the next level after a recent attempt at rounding out a chapter instead of focusing on shorter segments. For several days, I could tell my brain was in high gear, no matter what I was doing. I did mindless things quite often in an effort to slow down and relax, but while I was doing said mindless thing the thoughts were churning in endless circles.

Then a breakthrough seemed to happen: I had a vision for a new way of organizing the chapters that would be more blended and less choppy. It calls for changes about what goes where, using the 90,000 words I have so far as raw material but not necessarily in their current segments.

Evidence on the side of inspiration: I’m already making a lot of notes and at least trying to get the ideas down in some form, which counts as action.

Evidence on the side of hypomania: My brain fucking hurts and I really want to go eat donuts to club it into silence.

My Mind’s Pants Are On Fire

Once again my mind is lying to me. It often does. Logical arguments don’t help much, because these kinds of lies are built around a core of reality.

Here’s how it goes: My brain becomes especially anxious. Physically, biochemically, something is going on. No idea why. But my psyche won’t tolerate free-form anxiety. It insists on finding a focus for it.

What to choose? I have many sources of stress in my life. The anxiety zeroes in on one of them and hangs itself on it like a coat on a hook. I begin to worry obsessively about the thing.

Nothing has changed recently with the thing. There’s no new data. But suddenly I’m incredibly worried and can’t stop thinking about it. My mind is lying to me about how serious the thing is, because a day or two ago I was coping with that exact set of circumstances and was much less anxious.

It’s also lying because it’s not necessarily choosing the most urgent of my worries. It just reaches into the grab bag for one. It could have done the same amplification for any of the others.

Even though I know this, it’s hard to argue with it when the core worry is a real one. I can’t tell my brain there’s no reason to worry about it, because my brain will know I’m lying. All I can do is try to stay aware that I’m experiencing an exaggerated version of the truth.

You Don’t Say?

So, my psychiatrist thinks I am depressed.

More than usual, I mean; my general diagnosis includes a type of depression. But just because I told him about how often I’ve been thinking about death lately, and how much I’ve been struggling with food and other self-destructive behavior, and how much time I spend in circles that talk a great deal about the dark aspects of all our futures on this planet…he thinks I need more help with depression.

So out he comes with this particular health care organization’s chart of meds and starts suggesting things to add to my regimen.

Poor man. He means well. But either he hasn’t been taking notes at our previous sessions, or he hasn’t been looking at them.

The names of the meds are listed in little boxes by group, and as he proposes things I have to keep shooting him down.

No, we can’t add anything from this box. I’ve tried many of them, and they increase anxiety to a dangerous level. No, I don’t care if this one is new, I’ve seen the chemical formula. They moved a hydrogen atom so they could get a new patent, that’s all.

No, we can’t add anything from this box. They’re all addictive. I know my addiction history is in my chart. I made a point of putting it there.

Dear God, no, we can’t add anything from this box. Two of them almost killed me when I tried them; I’ve told you that before. You cannot give me any of these unless I’m an inpatient under close supervision so I don’t walk into traffic.

We could try a slight increase in this one med I’m already taking, or we could try one from this tiny box here…or maybe we could get me a therapist I could see more than once every six weeks.

Ha, ha, just kidding, I know that’s not going to happen.

Seeing Strength

I spend a lot of time making sure I am aware of my weaknesses and limitations. Not (most of the time) in a self-critical or self-defeating way, but out of the necessity for managing my conditions responsibly. No one is helped if I take on too much and end up unable to do anything. So, through the years since the last time I needed hospitalization, I have worked hard on this.

Last weekend, though, I got reminded that it’s okay for me to take a moment to see strength. For the first time in nearly ten years, I attended my local Unitarian Universalist church. I used to sing in the choir there, and met some wonderful people…and, eventually, slunk away because of my insecurity and my worsening mental health issues. Already near-suicidal, I came away from every sermon more ashamed and more depressed, the calls to action and social justice reminding me how little I was doing for the world as I struggled just to stay here in it. 

I had considered trying again for a while, and on Sunday I got to see that things have, indeed, changed in the last ten years. The old tapes did play, often, but they did not rule me. I felt plenty of social insecurity, but not enough to make me flee. As I sat and listened to the sermons, I realized that the process in my head was different. Alongside the old tapes, a different track played…ideas for poems, ideas for other ways I might be able to help, a consciousness that, even though I am not doing as much as I might wish, I am doing something.

I came away more at peace with what I am and what I do these days. More at peace with the fact that my battlefield is the psyche, that my focus is on helping others like me escape from prisons inside their skulls–so that, one day, they can be more present in the world and help fight the battles that need fighting.

Blankets Kill

I hear a lot of blanket statements about mental health care these days. The people making them usually mean well, and do not realize the harm they are causing.

In recent years, there has been growing awareness about the overprescription of psych meds, the irresponsible assigning of diagnoses and other toxic aspects of the domination of Western medicine perspectives. This is a good thing.

Unfortunately, however, it is getting translated into a common and frequently aired attitude that ALL psych meds are bad and anyone taking them is some kind of a) ignorant victim in need of enlightenment or b) lazy, compliant sheep unwilling to face their feelings without some kind of crutch.

Blanket statements about ANY group of people are dangerous. When the group of people is at constant risk for serious to fatal behaviors, blanket statements can kill. They can kill by increasing stigma and decreasing the tendency to get help.

Anyone managing a mental health issue has been on the receiving end of so much stigma and judgment already that your words have incredible power.

So you’ve got opinions about this issue. So you think Big Pharma is evil and out for money. Fine. But quit with the black and white thinking and admit you don’t understand the contents of everyone’s skull. Open your mind to the idea that there can be people who have tried many things and found a responsibly managed meds regimen to be the least of evils. People, like me, who choose it because it allows them to be more present in the world, to help their families and others, to stick around instead of hurting themselves. People who find it a useful tool to add to the psychological and emotional work they ARE doing.

You want to help? Advocate for making competent help available to all, so people aren’t getting these meds from unqualified doctors. Advocate for making competent psychotherapy and counseling available to the non-wealthy, since we know that with or without meds this is a huge need. Advocate for a general decrease of stigma.

And stop judging us. Somebody, somewhere, committed suicide today because they were caught in a web of shame and saw no road out. Blankets kill.

My Book is a Bastard

So what are these projects that have been sucking up my writing spoons? Well, as far as poetry is concerned, I am trying to put together a chapbook for a feature I am doing in November. It will be the first time I offer written poems for people to take home. It’s just a low end thing, but I have to go through the horror of figuring out which poems to put in it.

The other one, the really new one, is my nonfiction book. I have always had a vague idea of using the essays I’ve written for the last five years as raw material for something, but recently I’ve hammered out much more of a plan and begun writing pieces that are targeted specifically for that.

This book is a bastard. A hybrid. A mutant.

Why?

Because it doesn’t fit into an easy category, like memoir or inspiration or self-help. I don’t want it to be just another “here’s the story of some shit that I survived” memoir–but there will be memoir pieces in it designed to help a reader identify or get a perspective on eating disorders, addiction and mental illness. It’s not a “here’s what to do to change your life for the better” book–but it will contain some ideas of things that might be worth trying, or tips on finding your own ways. It’s not a psychology book–but part of what makes it a bit different will be the experience of going through some of this stuff as a person who already had a clinical background, and where knowledge is and isn’t helpful. It’s not a “spiritual inspiration” book–but will certainly contain some metaphysical thoughts on why not to give up.

From a marketing perspective, some might say I’d be well advised to change it to fit a category, because bastards are hard to market. But I don’t think I can do that; I need the outreach element to be there. We’ll see. It’s all so embryonic that the most important thing to do at this point is to keep writing.

The Best Thing I Ever Write

Periodically, I need to remind myself why I am writing. It’s not to get my ego stroked. It’s not for the high I get when performing. It’s not for the thrill of getting published. Those things are all gravy, and it’s easy for me to get drawn in to this exciting subculture and try to do too much. When I do that, it’s easy for me to start judging myself for not having the energy to go to nearly as many events as a lot of poets seem to do.

I am writing because the very best thing I ever write might help someone someday. That’s what started it, and that’s the core to which I return. I want there to come a time, in the dark watches of some wakeful night, when someone picks up something I wrote and it helps them get through until morning.

I will never know what the best thing I ever write is. It might not be what I expect. It might make someone feel less alone, or it might cause them to feel more accepting of some darkness within themselves. It might carry a metaphor that helps someone create their own personal metaphor as a talisman. It might be a piece that I don’t even rate very highly among my body of work.

Returning to this basic idea is even more important as I begin to consider pulling my prose together and morphing it into a longer project. Changes in style and a thousand different ideas about voice and structure try to distract me, but I must not let them.

Discomfort Zone

When I grow, it’s because I did things beyond my comfort zone. Granted, there are times my comfort zone is smaller than my own skull, but whatever it was at the time, I made conscious efforts to leave it. In everyday living, in social interaction, and especially in writing, I try to push the edges and perhaps push them a little further next time. And, naturally, I dance with the questions of whether it’s wise to push a certain edge at a certain time.

It isn’t productive for me to push in ways that will render me nonfunctional for days. It’s productive for me to push just enough for discomfort, just enough to require some courage. Enough to have consequences in my thoughts and emotions for days or weeks, but have them be consequences that I can manage without being propelled into a serious dip that will make me useless.

I’ve been sharing poetry with others for two years now, and I recently began to share prose for the first time. My essays on my blogs, theoretically, have been shared for years, but never critiqued by other writers or otherwise given feedback. That’s the new thing I did this week, and it was a very different experience from sharing poetry.

One piece of feedback I got is that people wanted more personal detail in some of the pieces. They encouraged me to depart a bit from the conversational style of these essays and branch out into a more personal viewpoint. So this week, I’m writing a piece that focuses more on describing an experience and isn’t about outreach per se.

It’s hard. It brings back the memory in a more visceral way, without the intellectual and the clinical to soften the edges. Even without that discomfort, it’s just different. For the millionth time, I’m the new kid at school.

Time To Pay the Piper

Well, it is starting. My “up phase” is transitioning to the not-so-fun part of the process. The energy that sparked through me, that last week required caution to manage, is now turning to anxiety. I can almost feel it–it’s like listening to an engine rev and then suddenly hearing a grinding, clanking sound. Energy is now stuck and fouled up in the gears of my brain instead of passing through. It’s overflowing into my body, making it hard to breathe deeply or sit still.

Bipolar II, like its more acute cousin Bipolar I, is classified as a mood disorder. However, sometimes it makes sense in my own experience to think of it more as an energy disorder. Some more philosophical types even compare it to kundalini energies and such–whatever it is, the brain is taking in and/or processing some type of energy a different way. Mood changes are either a result or a parallel process. Not that other issues don’t relate to energy as well–one reason those who deal with depression suffer so much frustration when given advice that is only mood-based. 

At any rate, I feel it and I know from experience what will come. “But wait,” I can hear the next self-appointed free-lance psychiatric counselor I meet say, “Aren’t you being negative expecting bad things like this? What about the power of positive thinking? You’re creating defeat for yourself.”

To which I reply, take your chemically balanced brain and go…well, to put it politely, just go away.

Understanding my patterns and making “weather predictions” based on past observations is NOT defeatism or negative thinking. It does not exclude the presence of grace, the opportunity to make progress in handling whatever happens, or the power of hope. It’s a tool like any other. It’s hiking through mountains and canyons with my eyes open instead of being blindfolded and experiencing terror with every drop.

The Importance of Being Evil

I cannot be a whole person unless I understand and accept that I am partially evil. This understanding took me years of work, and the acceptance of it will probably be a lifelong task. 

The idea that we all have evil is not new, but I am not concerned with that. Nor am I taking on the endless task of defining what exactly evil is and is not. I am only speaking for myself: some of the things I personally define as evil undeniably exist in my psyche. There is some dark crap in there, and it’s not going to go away. Self-improvement and spiritual work can help me improve my behavior, but there are some things that cannot be changed. I will never be pure. 

Why is understanding this so important to me? It’s hard to explain. It’s hard to explain the huge leap in self-acceptance I made when I was able to incorporate these parts of myself into the whole. It’s hard to explain how much closer it makes me feel to the rest of humanity (a feeling of closeness I need, since I so often feel alienated.)

Instead of my self-esteem being based on inherent goodness, I can base it on my behavior. Now I don’t have to feel like an impostor every time an uncharitable thought or angry fantasy comes into my mind. 

I can be angry at people doing bad things and still understand that I am not a different species from them. I can know that however dark and twisted the labyrinth of their actions and motivations might be, it is still a human labyrinth and I have one too. I can understand that I am just as capable of terrible things as anyone else given a different set of circumstances, different brain chemistry, different trauma–even different past life baggage if you’re into that kind of thing. I’m not better than anyone. I am a potential supervillain.

Battling addiction, mental illness and general despair requires a powerful sense of self. Anything that makes me more connected with that sense of self has the potential to save my life and give something to the world. I’d rather be a partially evil person trying to act non-evil than someone whose useless quest to be good helped to kill them.

Just Sick Enough

When you have a psychiatric diagnosis, there are times when it’s obvious you need help. Other times, it might not be as obvious.

I had to jump through some hoops recently to get seen by a psychiatrist with my new insurance. Among these hoops were multiple rounds of the same questions about the nature and severity of my symptoms.  As I tried to answer as patiently and honestly as possible, I was aware of feeling anxiety about whether I would be deemed “sick enough” to be worthy of care.

You see, although I have been under some form of care for many years, it’s been seven years since the last time I was in a hospital outpatient program and nine years since the last time I was hospitalized outright. I’m only on one relatively benign mood stabilizer.

In recent years, I have been aware of how lucky I am to be where I am. I work hard not to throw this good luck away by falling back into addiction or other self-destructive behavior. But should “doing well” mean I don’t need help any more? Especially with bipolar, where patients are quite likely to float out the door while in a happy place, stop their meds, and wind up in the ER?

So it’s a dance. Be sure to appear “sick enough” to be taken seriously, without appearing so ill that you get a level of intervention you don’t need or want. Be eloquent enough about what goes on in your head to make sure someone knows you aren’t “fixed.”

Why? Why not just have enjoy having fewer appointments and one less thing on your current record? My reason is simple: my condition means that matter how well I am doing, it is possible for me to have a serious episode and need more help. Having a psychiatrist of record means having someone to call for an urgent meds adjustment. In the event of dire need, it means I have a name to give the ER staff.

It’s regrettable that people like me must defend our need to be responsible and prepared for trouble.

Time’s Up

When you’re an introvert, interacting with others is subject to a clock in your head. At a certain point, a timer gives a gentle chime. “That’s all the time we have,” it says, like a therapist at the end of the fifty minutes.

We can ignore the timer, to a degree, if what we are doing or who we are conversing with is important to us. We pay a price later by having to spend even more recovery time in the social equivalent of the fetal position.

For me, part of my trouble in the past was that I didn’t realize I was an introvert, especially because I can be very interactive at times and don’t fear things like public speaking. I just thought I had bouts of “laziness.” It took me a while to see the pattern of them and understand myself a little better.

I understand now that introversion doesn’t mean what I used to think it meant. It’s not shyness or social awkwardness, although those can sometimes go with it. It has to do with the level of stimulation we can handle and the level of our need to focus within.

Learning to accept myself as an introvert is the same as learning to accept myself as an addict, or a person with mental health issues, or anything else. It’s just what I am, and it has its own advantages and disadvantages. Fairness, or desirability, or how well it fits with my culture and circumstances, is irrelevant.

Isolation

We use the word as a verb often these days. I’m isolating a lot. She started isolating. He tends to isolate when he gets depressed.

Isolating is different from just being an introvert or enjoying solitude. Isolating is ducking phone calls, declining invitations when we do get them, shunning gatherings or meetings we used to attend.

We do it because of depression, or shame, or pain and fatigue. We do it because we are too tired to face the dreaded question “How are you?”

Then we keep doing it because we feel guilty about having done it for a while. Guilty about the phone calls we ducked and the meetings we skipped. Overwhelmed at the thought of trying to explain why we flaked out on interactions when we don’t really understand how it works ourselves–or, if we do understand it well, we may have also learned that understanding it doesn’t make it any easier to explain.

It’s dangerous for us. It can make depression worse. If we are in recovery from an addiction, it increases our chance of relapse. It’s bad for our physical health and narrows our world in a way that can let our negative thoughts and traits begin to dominate.

So how do we stop doing it? How do stop doing it?

One thing that’s really hard for me to accept, even after years of work, is that my mental health issues may always manifest in cycles of mood and ability to interact. For me, the struggle is about harm reduction and trying to reduce the shame and fear that extend a cycle of isolation past its natural life span.

And when I find a foolproof way of doing that, I’ll be sure to let you know.

I’d Rather Kill An Antelope

(Originally posted on my old site Not This Song, 2013)

For a long time, I tried to pass for normal. By normal I mean my idea of what my normal should be, which many would call overachieving. I was gifted with some abilities and I had certain expectations about how they should be used. When I failed, or had a breakdown, or acted out with food or drugs to drown my symptoms or stifle the disconnect I felt from myself, I told myself that I would straighten out my problems and then I’d be able to succeed.

Eventually, over a period of years, I came to know and even to accept that there were some things about me that meant I needed to change my expectations. Part of it was accepting my mental health issues; part of it was just understanding my personality better. I tried to set new goals more tailored to my real self.

I’ll do or think just about anything to have a shot at feeling good about myself. On a very deep level, I believe I have to do or be something in particular to have earned a spot in this universe, and I try to convince myself that this is indeed happening. So, when I began to accept my differences, I tried to convince myself that those differences made me special. When I felt envy toward other mothers with clean houses and more organized lives, I dealt with my feelings of shame by embracing a sort of eccentric genius identity; someone above or beyond such mundane concerns. When I felt envy toward my former classmates who had great careers, I told myself that their lives must not be as psychically or spiritually rich as mine.

There’s nothing wrong with believing that I have something to offer because of and not just despite my differences. But it’s not right for me to use that idea to gloss over my responsibility to try to learn to cope with “normal” life as well as I can. It’s also not right for me to use this “weird equals special” idea to cover up the very real pain I have about the things I will always struggle with.

The truth is that there’s a part of me that will always long to be a relatively normal, functional person. The psychologist Marie-Louise Von Franz, one of Jung’s early students, wrote that in ancient tribes the boys who ended up being shamans were usually unsuited to be hunters. Many of them would have rather been a hunter; would rather have been the hero who brought down the biggest antelope at the hunt. The young man who stood proudly at the initiation rite, being welcomed into the ranks of adults and feeling the satisfaction of having provided a meal for the hungry. The guy who married the prettiest girl in the tribe, had eight children and became a respected elder. They’d rather have been that guy than the guy living in the isolated cave, playing with bones and having his entrails metaphysically scattered by jackals.

Even if I join the writers and poets and the other shamans of our time, there will always be a part of me that is sad not to be a hunter. That envies my husband’s ability to function at a corporate job without having to take anxiety attack restroom breaks every hour; that cringes in shame when I read about friends who are working for social justice. I am learning to function better, and I have hopes about being able to help and serve others better, especially the dual diagnosis community. But I feel like a shaman on a hunt: I might learn to hit a squirrel with my slingshot, but the antelopes are for the real hunters.

I know that being the shaman had many compensations, and I’ve tasted some of the wonders and beauties that may enter my life more and more. I might become a good shaman. I might serve the minds and souls of others. I even hope to become a voice that will help bridge the gaps in understanding between groups of people. But it’s important to admit that I wish I could also be a hunter; that I cry when I think about the problems in the world and all the work that needs to be done. My people are hungry; the shaman cries: they don’t care where my soul is traveling tonight. They just want to eat, and neither my passion nor my tears can feed them.

Are We Disposable?

(Originally posted on my old page Not This Song, 2014)

It’s a selfish question that hovers around the edges of my mind when I think about the state of our world. I’m not involved in politics, and I tend to be ignorant of many topics that speak of important developments–I don’t like that about myself, but it is my truth. As my readers know, there are times when my main contribution to society involves working on ways not to be an active drain on it.

Those who share some of my issues are often seen as an impediment to the prosperity of others, and certain voices try to shame us when we use the services our governments may provide to care for those who have trouble caring for themselves. I’d like that to be different, but I don’t imagine it will ever be uncomplicated.

In the end, we are all still animals competing for resources, and only the trappings of civilization introduce the idea of giving any resources to the helpless. Some have said that the measure of a civilization’s advancement is related to how much, and how well, they care for their children, their sick and their elderly.

Whatever one thinks about the world situation, it’s pretty clear that overpopulation will continue to be a problem. Resources will be at more of a premium, and there will begin to be more sorting of which kinds of sick or disabled are worthy of help. Mental health may not be highest on the list. Addiction-related issues are likely to be even lower, since addicts are usually seen as deserving their suffering.

This, from a Darwinistic point of view, may be a regrettable but unavoidable thing. But how much should we resist its progress? How much should we fight to be seen as something besides a liability? Is there a place for us in the future?

Sometimes, when my mind is spinning its catastrophic phantasies, I go postapocalyptic and imagine how long I, and many I care about, would last. I always imagine myself as a liability to whatever group I’m with, unable to function very well without my meds, or unable to see because my glasses got broken. I see myself as useless, without a lot of physical strength or swiftness to build or get things the group needs. I see myself as the first to fall behind and become lunch for zombies–unless a friend gives me a helping hand.

And why should they?

Why should they, unless we have some kind of value that isn’t strictly practical?

Why should they, unless those crowded barracks or underground warrens need us? Unless humanity is incomplete without us? Unless there’s a spark that’s worth maintaining, a spark worth a bit of food or a place near the fire?

Why should any society help its disabled, even when a cold equation might say the help isn’t bringing a sufficient return?

I got on this subject with my therapist during one of my dark and hopeless spirals recently, and we talked about the idea that humanity, by nature, will always need its shamans, its poets and its weird people in general, as well as the wisdom of its elders. “That may be true,” I said, “but you can’t deny that in a crisis state the strong and able will be valued most. The women who can bear healthy children, the physically strong, the mentally stable: these are the ones who can outrun the zombies or will get rescued first. You can’t deny that I’ll be one of the first to go.”

Then he told me that, although it might be true in some situations, it doesn’t mean I deserve it. Then he said something that cheered me up: he told me that if it does happen, maybe I’ll discover that the zombies are in need of poets too. Feeling better, I began to imagine my new dream job as Poet Laureate of a zombie city.

I don’t know if we are disposable. I don’t know, not for sure, whether our existence has intrinsic value. But I do exist, and I am grateful for it, and I have a daughter for whom I want to model values of love and not shame. I want her to see me doing my best, and believing I have something to give the world, so that she might learn to believe the same thing.

So I send love to all my peers, and invite us to go down swinging if the time comes, and hold our heads up until then. As a token of my affection, I enclose the opening poem from my potential future body of work:

Brains

Arrrgh brains brains
Brains gurgle thud howl
Brains brains crunch splat
Brains brains brains.