In Case of Emergency, Become Sane

My brain is weird.

This isn’t news, of course. But one particular weirdness is obvious this week: the way horrible, debilitating anxiety can click over into calm action during an emergency.

I can have gasping, chest-hurting anxiety over a phone call or a doorbell ringing. But a few days ago when our house was two blocks from the edge of a fire evacuation zone, I sat calmly writing a list of what to grab.

When my daughter had unexplained stomach pain the next day, I worried and obsessed constantly about what it was. But when it became clear we needed to go to the ER, I became completely focused. Driving with someone vomiting and moaning in pain in the passenger seat isn’t easy, but I did fine.

Turned out to be a kidney stone. A night later, she had to go back because she couldn’t keep down her meds. The night after that, she had a sudden, new symptom. Things had been calming down, and when this happened it hit me like a blow from a club. I lost my breath, my chest hurt…what is this? Will it go away? Should I call someone? Should I take her to the ER again? But after it was clear we needed to go, the magic switch flipped.

My husband asked if I was OK to drive. I told him yes. He knew it was true. He could see it clearly–the wife who had been pacing and gasping only a minute ago now met his eyes with solid certainty. And even when the scary symptoms got worse on the way to the hospital, I kept my eyes on the road and got us there. (She’s going to be fine, thank goodness; it was an uncommon meds side effect and they were able to treat it.)

So what’s the story? I know I’m not the only one; I’ve heard others talk about it too. Some highly anxious people actually thrive in crisis-oriented jobs like ER work. I think it has something to do with defined tasks that leave no space for indecision. Whatever choices have to be made must happen fast and be followed by action. The urgency blots out the endless future tripping and second guessing.

Someone I know thinks it’s a type of dissociation, and those of us with certain kinds of brains or trauma are just better at it. That makes sense to me.

Whatever causes it, I’m grateful I can be less of a liability in an immediate crisis. But how I wish I could flip that mysterious switch on command!

Oh, No! Not Perspective!

Don’t make me be aware of how gigantic and complicated the world of writing is! Let me stay in my little bubble of blogs and local poetry readings!

This week I’m trying out a new submissions tracker online. You can use a lot of filters to search for publishers or agents that accept the things you want to send out. I decided to look into it because they really keep their listings current–when I used books, I’d often go to a publication’s website to find they didn’t exist any more or hadn’t accepted new material in years. The tracker also has stats on things like average response time.

I’ve really done very little submitting to non-local things, and I want to change that. But I have to admit it’s intimidating to read some of these sites. I have a tendency to look at whatever I am thinking of sending them and think “nah, they’d never want this.” Especially the heavier literary sites. I suspect some of the guidelines are written in such a way as to discourage as many people as possible from adding to their undoubtedly huge slush pile.

But submitting is not just emotionally intimidating, it’s a pain in the ass too when you’re a newbie. Many publications only accept submissions electronically these days through an engine like Submittable. It’s not too bad once you get used to it. However, they don’t all use that. Some want you to set up an account on their very own server just to do a one-time submission. And everyone wants you to tweak your files in a different way.

And then there are submission fees. They usually run about $3, except for contests and book-length works. It’s an amount designed to feel like no big deal, but they add up! I’ve heard an author brag that she never, ever submits anywhere that has fees–well, that leaves the majority out. She can afford to be picky now that she’s well-known, but…at any rate, I’m budgeting to do about 8 submissions a month. It’s what I can afford.

It’s always overwhelming being the new kid at school. On the bright side, it’s a role I’ve played many, many times. I’d like to think I’ve become more comfortable with it. Or at least comfortable with being uncomfortable, if you know what I mean.

My Mind’s Pants Are On Fire

Once again my mind is lying to me. It often does. Logical arguments don’t help much, because these kinds of lies are built around a core of reality.

Here’s how it goes: My brain becomes especially anxious. Physically, biochemically, something is going on. No idea why. But my psyche won’t tolerate free-form anxiety. It insists on finding a focus for it.

What to choose? I have many sources of stress in my life. The anxiety zeroes in on one of them and hangs itself on it like a coat on a hook. I begin to worry obsessively about the thing.

Nothing has changed recently with the thing. There’s no new data. But suddenly I’m incredibly worried and can’t stop thinking about it. My mind is lying to me about how serious the thing is, because a day or two ago I was coping with that exact set of circumstances and was much less anxious.

It’s also lying because it’s not necessarily choosing the most urgent of my worries. It just reaches into the grab bag for one. It could have done the same amplification for any of the others.

Even though I know this, it’s hard to argue with it when the core worry is a real one. I can’t tell my brain there’s no reason to worry about it, because my brain will know I’m lying. All I can do is try to stay aware that I’m experiencing an exaggerated version of the truth.

You Don’t Say?

So, my psychiatrist thinks I am depressed.

More than usual, I mean; my general diagnosis includes a type of depression. But just because I told him about how often I’ve been thinking about death lately, and how much I’ve been struggling with food and other self-destructive behavior, and how much time I spend in circles that talk a great deal about the dark aspects of all our futures on this planet…he thinks I need more help with depression.

So out he comes with this particular health care organization’s chart of meds and starts suggesting things to add to my regimen.

Poor man. He means well. But either he hasn’t been taking notes at our previous sessions, or he hasn’t been looking at them.

The names of the meds are listed in little boxes by group, and as he proposes things I have to keep shooting him down.

No, we can’t add anything from this box. I’ve tried many of them, and they increase anxiety to a dangerous level. No, I don’t care if this one is new, I’ve seen the chemical formula. They moved a hydrogen atom so they could get a new patent, that’s all.

No, we can’t add anything from this box. They’re all addictive. I know my addiction history is in my chart. I made a point of putting it there.

Dear God, no, we can’t add anything from this box. Two of them almost killed me when I tried them; I’ve told you that before. You cannot give me any of these unless I’m an inpatient under close supervision so I don’t walk into traffic.

We could try a slight increase in this one med I’m already taking, or we could try one from this tiny box here…or maybe we could get me a therapist I could see more than once every six weeks.

Ha, ha, just kidding, I know that’s not going to happen.

The Deadly Reflex

Have you ever won something, or been chosen for something, and immediately started playing a negative tape in your head about it? Coming up with reasons it’s no big deal instead of just being happy and honored?

Two weeks ago I sent out a piece applying for a narrative writing workshop. I thought getting in was pretty unlikely, but decided to give it a shot. Well, I’m in.

Any bets on how many seconds it took that part of my brain to go from joy to rationalization?

They must not have received many submissions. The submission process was probably just a marketing ploy to make the workshop seem more exclusive and therefore more desirable. They’re really taking anyone who is willing to pay the fee.

It has to be something like that, right? Surely they couldn’t have really liked my writing and chosen it over some actual competition?

Yeah, I do this. When I won a couple of prizes in a local poetry contest last winter, I told myself the contest must have had very few entries. When I shared the happy news that one of my poems was accepted for a gallery show project, I always emphasized that it was a small gallery!

The weird thing is, not all of me is this way. I’m capable of the opposite. I can admit that I really like how I write; that I think it’s good. (And why not? Of course I like my own style, and work toward improving it in ways that make me like it even more. It’s mine.)

But that other voice is eager to chime in, and I need to recognize it. “Oh, you again. Hi. Uh-huh. Really. All right, you’ve had your say, now fuck off.”

Through the Cracks

I just found out I am one subject of criminal irresponsibility on the part of my particular health care system.

After some of the struggles of this spring and summer, I decided it was time to make a couple of appointments with my mental health team. When I went onto the website, the name of the psychologist I see was gone. I inquired with the department and discovered she doesn’t work there any more.

I assumed I would be scheduled with a replacement, but was told that it would take some time. Basically, I am going to be treated like a new patient again.

It took nine months to get in to see someone when I was new.

So, first, putting me back in the new patient group isn’t right. Second, even if they had to, someone could be letting patients know their care provider is gone and put them in the queue for upcoming openings, instead of only starting the process when the patient (who, hello, has a mental illness that affects their functioning) manages to reach out.

I’m upset on my own behalf, but I think I’m more upset about people who are doing worse than me right now. Being cut off like this may tip them from barely coping to needing hospitalization.

Not to mention the stress of losing what may have been an emotional support without warning, or a chance to say goodbye, or a single sign that anyone associated with their treatment gives the slightest fuck about them.

Raw

Don’t you hate it when you bite your nails late at night until they bleed? And tear bits of skin off around the nail beds, exposing raw red flesh? And it hurts, but only for a little bit, and you finally go to sleep. Then you wake up in the morning feeling as if your fingertips have been dipped in acid.

Washing your hands is excruciating. The thought of doing the dishes makes you want to cry. But the dishes don’t care. They sit there waiting. And you don’t live alone, so you can’t just let them pile up. And you think about asking someone else to do them, but you tell yourself you don’t deserve that kind of consideration, because you did this to yourself.

Then you try to put bandaids on all ten fingers so you won’t keep bumping the skinned flesh into things. Then you realize you need to wash your hands.

Then you sit down to work on a poem and can’t stop looking at your stubby, raw, red fingertips moving over the keyboard.

Oh….what’s that you say?

Not everybody does this?

Shit.

Flooded

How do we know when we’re writing too much?

It’s tempting to think they’re’s no such thing as too much. Maybe that’s true for some people, especially if the things they write cover a variety of styles and subject matter.

But this week, I’m conscious that I may be writing too much of a project too quickly. My nonfiction project contains many memoir-style pieces for the purposes of outreach, and I am working on some that cover a very dark time in my life.

My task is to convey, at different times, an authentic tone of what it’s like to be a practicing addict, to take doses of drugs you know might kill you and not care as long as you get high, to be deep in clinical depression or overwhelming anxiety, to be suicidal, to be convinced that suicide is the best thing you can do for those you love, to know that you have lost and drugs have won, to plan your own disappearance and death, to know that you deserve nothing better…

My task is to write it so well that an addict or a mental illness sufferer will identify strongly, while someone not familiar with the feelings will have a window opened to a bit of understanding.

Strong feedback I’m getting tells me I am at least partially succeeding in this. But there’s a cost: I’m writing it authentically enough to affect myself as well.

Floods of old emotions, ones that are always there but more in the background, wash over me. Old grief, guilt, and shame come up often. The otherworldly loneliness of that time echoes.

Too much of this is dangerous to my current mental health. I’m noticing hits to my self-care and changes in how I relate to my family.

These things need to be written…but I need to pace myself.

Fighting Fire With Poetry

Readers who don’t live in California may still already know this, but just in case–we’re on fire. Worse than ever before. Hundreds are dead and more hundreds missing. Ash and smoke have rendered the air bad enough to close schools and other things; masks are being worn for hundreds of square miles.

What do poets do at a time like this? We write, of course. We write about what’s going on–and sometimes, for our own survival, we go on writing about other things too.

Or we write about what’s going on, but indirectly. We write things that come from ourselves after we strain current events through the cloth of our psyche. Odd inspirations that come to us, or characters inspired by people we met or heard about.

I had an experience like this a couple of nights ago when I read a wildfire-related poem at an open mic. It was a strange one–for some reason, what came from my psyche was a poem about visiting a friend in the psych ward while the fires were burning, and about the way his mental illness was severe enough to cut him off from being able to feel or care about them.

But strange can be good sometimes–as I know I’ve said before, writing about the same basic things from a million perspectives is what poets do, because you never know which angle will touch somebody.

 

Seeing Strength

I spend a lot of time making sure I am aware of my weaknesses and limitations. Not (most of the time) in a self-critical or self-defeating way, but out of the necessity for managing my conditions responsibly. No one is helped if I take on too much and end up unable to do anything. So, through the years since the last time I needed hospitalization, I have worked hard on this.

Last weekend, though, I got reminded that it’s okay for me to take a moment to see strength. For the first time in nearly ten years, I attended my local Unitarian Universalist church. I used to sing in the choir there, and met some wonderful people…and, eventually, slunk away because of my insecurity and my worsening mental health issues. Already near-suicidal, I came away from every sermon more ashamed and more depressed, the calls to action and social justice reminding me how little I was doing for the world as I struggled just to stay here in it. 

I had considered trying again for a while, and on Sunday I got to see that things have, indeed, changed in the last ten years. The old tapes did play, often, but they did not rule me. I felt plenty of social insecurity, but not enough to make me flee. As I sat and listened to the sermons, I realized that the process in my head was different. Alongside the old tapes, a different track played…ideas for poems, ideas for other ways I might be able to help, a consciousness that, even though I am not doing as much as I might wish, I am doing something.

I came away more at peace with what I am and what I do these days. More at peace with the fact that my battlefield is the psyche, that my focus is on helping others like me escape from prisons inside their skulls–so that, one day, they can be more present in the world and help fight the battles that need fighting.

Blankets Kill

I hear a lot of blanket statements about mental health care these days. The people making them usually mean well, and do not realize the harm they are causing.

In recent years, there has been growing awareness about the overprescription of psych meds, the irresponsible assigning of diagnoses and other toxic aspects of the domination of Western medicine perspectives. This is a good thing.

Unfortunately, however, it is getting translated into a common and frequently aired attitude that ALL psych meds are bad and anyone taking them is some kind of a) ignorant victim in need of enlightenment or b) lazy, compliant sheep unwilling to face their feelings without some kind of crutch.

Blanket statements about ANY group of people are dangerous. When the group of people is at constant risk for serious to fatal behaviors, blanket statements can kill. They can kill by increasing stigma and decreasing the tendency to get help.

Anyone managing a mental health issue has been on the receiving end of so much stigma and judgment already that your words have incredible power.

So you’ve got opinions about this issue. So you think Big Pharma is evil and out for money. Fine. But quit with the black and white thinking and admit you don’t understand the contents of everyone’s skull. Open your mind to the idea that there can be people who have tried many things and found a responsibly managed meds regimen to be the least of evils. People, like me, who choose it because it allows them to be more present in the world, to help their families and others, to stick around instead of hurting themselves. People who find it a useful tool to add to the psychological and emotional work they ARE doing.

You want to help? Advocate for making competent help available to all, so people aren’t getting these meds from unqualified doctors. Advocate for making competent psychotherapy and counseling available to the non-wealthy, since we know that with or without meds this is a huge need. Advocate for a general decrease of stigma.

And stop judging us. Somebody, somewhere, committed suicide today because they were caught in a web of shame and saw no road out. Blankets kill.

Discomfort Zone

When I grow, it’s because I did things beyond my comfort zone. Granted, there are times my comfort zone is smaller than my own skull, but whatever it was at the time, I made conscious efforts to leave it. In everyday living, in social interaction, and especially in writing, I try to push the edges and perhaps push them a little further next time. And, naturally, I dance with the questions of whether it’s wise to push a certain edge at a certain time.

It isn’t productive for me to push in ways that will render me nonfunctional for days. It’s productive for me to push just enough for discomfort, just enough to require some courage. Enough to have consequences in my thoughts and emotions for days or weeks, but have them be consequences that I can manage without being propelled into a serious dip that will make me useless.

I’ve been sharing poetry with others for two years now, and I recently began to share prose for the first time. My essays on my blogs, theoretically, have been shared for years, but never critiqued by other writers or otherwise given feedback. That’s the new thing I did this week, and it was a very different experience from sharing poetry.

One piece of feedback I got is that people wanted more personal detail in some of the pieces. They encouraged me to depart a bit from the conversational style of these essays and branch out into a more personal viewpoint. So this week, I’m writing a piece that focuses more on describing an experience and isn’t about outreach per se.

It’s hard. It brings back the memory in a more visceral way, without the intellectual and the clinical to soften the edges. Even without that discomfort, it’s just different. For the millionth time, I’m the new kid at school.

Time To Pay the Piper

Well, it is starting. My “up phase” is transitioning to the not-so-fun part of the process. The energy that sparked through me, that last week required caution to manage, is now turning to anxiety. I can almost feel it–it’s like listening to an engine rev and then suddenly hearing a grinding, clanking sound. Energy is now stuck and fouled up in the gears of my brain instead of passing through. It’s overflowing into my body, making it hard to breathe deeply or sit still.

Bipolar II, like its more acute cousin Bipolar I, is classified as a mood disorder. However, sometimes it makes sense in my own experience to think of it more as an energy disorder. Some more philosophical types even compare it to kundalini energies and such–whatever it is, the brain is taking in and/or processing some type of energy a different way. Mood changes are either a result or a parallel process. Not that other issues don’t relate to energy as well–one reason those who deal with depression suffer so much frustration when given advice that is only mood-based. 

At any rate, I feel it and I know from experience what will come. “But wait,” I can hear the next self-appointed free-lance psychiatric counselor I meet say, “Aren’t you being negative expecting bad things like this? What about the power of positive thinking? You’re creating defeat for yourself.”

To which I reply, take your chemically balanced brain and go…well, to put it politely, just go away.

Understanding my patterns and making “weather predictions” based on past observations is NOT defeatism or negative thinking. It does not exclude the presence of grace, the opportunity to make progress in handling whatever happens, or the power of hope. It’s a tool like any other. It’s hiking through mountains and canyons with my eyes open instead of being blindfolded and experiencing terror with every drop.

The Eye Roll

Part of living with bipolar disorder is encountering the Eye Roll from loved ones.

The Eye Roll goes like this: I, currently in an “up” state of mild or moderate hypomania, gush about all of the new things I have decided to do. Classes I have decided to take, new languages I have decided to learn, writing projects I have just decided are awesome and should receive devotion, exercise programs I have decided to start…you get the idea.

These bursts of dedication can happen to anyone; certainly we have all had the experience of starting and abandoning new projects. However, with hypomania they are ALL trying to happen at once. In a single week or less I experience–and babble to my family at length about–all of the above and more.

So the Eye Roll is a normal reaction developed over years, in someone who has watched me start so many new projects only for them to disappear during my next depressive phase (and often, rather than reappear during my next up period, be replaced by my NEW set of great ideas.)

My loved ones want to encourage me in taking actions. They’d rather see me engaged than depressed, so they try not to make the Eye Roll obvious. Nevertheless, it is felt and I have enough self-knowledge to respect it.

The spirit behind it has helped me put some cautions into practice. If an idea or desire recurs over months, during a series of up phases, it may be worth following up. However, if it is brand new, it’s not an idea I should spend significant money on or make any life-altering decisions about.

A little money, well, that might be okay. Buying a new wall calendar to lay out plans, or downloading an app, is no big deal. But it’s NOT the time to buy a treadmill, spend hundreds of dollars on a class, or get a tattoo. I need to wait and see if my wonderful new idea has legs or not.

Useful

How do I maximize my usefulness to others? How do I assess my strengths and weaknesses honestly and make good choices about how hard I should push myself at any given time? How do I repeat this assessment frequently and deal with the self-doubt that tries to make me push myself too hard out of guilt or shame? How do I resist the impulse to apologize constantly for what I am doing and the fact that it’s not enough?

I’ve written on this theme before. I’m sure I will write about it at intervals for the rest of my life. Two years ago I wrote this, in fact:

“I don’t want to live my life as a walking apology, but I also don’t want to become the kind of person who sees no need for regrets about how my condition and/or my shortcomings affect others.

Where is the line; where does a realistic assessment of my condition end and making excuses begin?

Could I be allowed to stop making promises, or even implied promises, that set me up for the inevitable apologies?

There’s no way for anyone else to assess, or even for me to assess reliably, the subjective amount of effort I’m making. So how can I, when unable to perform consistently, express that the thing, principle or person is still important?

Can I ever be good enough, do enough, love enough to have it mean something?”

Looking that up was interesting because it really made my point: This theme recurs. It recurs because the question is always relevant in a world that needs us to do our best. It’s not going to stop recurring, and I need to meet it with honesty and humility whenever it arrives.

Suddenly, It Sucks

Many writers know this experience. We’re chugging along with our stories or poems or whatever. We don’t think they are perfect, but there are things we really like about them. Then, WHAM! We hit a pocket of insecurity.

Suddenly, everything we have written sucks. It’s cliched. Trite. Boring. Unoriginal. What were we thinking?

I experience an augmented version of this when I am in a depressive phase. Today, I am aware of a general feeling of pessimism about all aspects of my life. My writing is no exception; I am looking at drafts that pleased me a week ago and wanting to scrap them.

Actually, as recently as two days ago I was really happy with a work in progress that I’m planning to read at an open mic this weekend. I had that impish grin I get when I’ve just successfully completed a draft, and was looking forward to reading it. Now I’m not even sure I want to go, and not at all sure I feel comfortable reading my new creation if I do.

The good news is, I’ve been through some crap that has taught me I shouldn’t always believe what I am thinking.

How to Take a Compliment

I know I am not the only one who has trouble with this concept. I’ve actually worked pretty hard to learn to respond to a compliment with a simple “thank you” and put a period at the end of it. Just say “thank you” instead of making some self-deprecating remark, or some remark about how it’s no big deal, or some remark about how I could or should have done it better and this is why that didn’t happen.

I am getting a refresher course in this skill as I continue to get positive feedback about my poetry from people. I went to a reading last night and had several people respond positively to my recent work. Also, I recently had a poem accepted for a gallery show in June that is going to feature artwork inspired by local poets’ work about women’s issues. Right now, as I write this, some Bay Area artist is working on a piece that is inspired by my poem. My poem is going to be on the wall of the gallery for several weeks along with the artwork. I’m going to be reading at the gallery opening. How crazy is that?

I noticed that after learning my poem was in, I had a tendency to minimize it when telling people. I emphasize that it’s just a small gallery or just a local thing. Why do I do this? The truth is, this is awesome and I feel honored to be a part of it. It doesn’t matter that I’m a relative newbie in the poetry community. It doesn’t matter who else is in the show. I sent in work and somebody thought one of them was a good fit for their vision of the show. I’m allowed to feel good about that.

So are you, poets out there. You’re allowed to send your work out if that’s something you enjoy. You’re allowed to read at open mics. And when you get a compliment about your work, you’re allowed to accept it.

The Importance of Being Evil

I cannot be a whole person unless I understand and accept that I am partially evil. This understanding took me years of work, and the acceptance of it will probably be a lifelong task. 

The idea that we all have evil is not new, but I am not concerned with that. Nor am I taking on the endless task of defining what exactly evil is and is not. I am only speaking for myself: some of the things I personally define as evil undeniably exist in my psyche. There is some dark crap in there, and it’s not going to go away. Self-improvement and spiritual work can help me improve my behavior, but there are some things that cannot be changed. I will never be pure. 

Why is understanding this so important to me? It’s hard to explain. It’s hard to explain the huge leap in self-acceptance I made when I was able to incorporate these parts of myself into the whole. It’s hard to explain how much closer it makes me feel to the rest of humanity (a feeling of closeness I need, since I so often feel alienated.)

Instead of my self-esteem being based on inherent goodness, I can base it on my behavior. Now I don’t have to feel like an impostor every time an uncharitable thought or angry fantasy comes into my mind. 

I can be angry at people doing bad things and still understand that I am not a different species from them. I can know that however dark and twisted the labyrinth of their actions and motivations might be, it is still a human labyrinth and I have one too. I can understand that I am just as capable of terrible things as anyone else given a different set of circumstances, different brain chemistry, different trauma–even different past life baggage if you’re into that kind of thing. I’m not better than anyone. I am a potential supervillain.

Battling addiction, mental illness and general despair requires a powerful sense of self. Anything that makes me more connected with that sense of self has the potential to save my life and give something to the world. I’d rather be a partially evil person trying to act non-evil than someone whose useless quest to be good helped to kill them.

Not Enough

How often we get stuck not doing anything because we have been taught that whatever we do will not be enough?

I drag myself to a support group meeting. More frequent attendees ask “Where have you been?” I manage to get to a poetry reading. Other poets ask “Too bad you missed yesterday’s event, are you going to make it to tomorrow’s?” I stumble into tai chi. Classmates say “Haven’t seen you for a while, are you coming to the workshop?”

Now, to some people, all of these things might have a very different connotation. These comments might simply mean that these people like me and want to see more of me. But do you think I interpret it that way? No, I interpret it to mean that I am not doing enough, not being enough, not giving enough to that particular community.

It’s easy for me to think that if I compare myself to people who have thrown themselves deeply into one community and seem to devote themselves to it on a daily basis. If I set a standard like that for myself, a standard that fits neither my health nor my current lifestyle nor my devotion to more than one thing, I will always feel deficient. 

If I have the clarity to question my thinking, I see that my feeling of constant deficiency is not fact. I also see that it cannot be fixed by doing more; that I would still manage to find a way to see myself as deficient because the idea is ingrained deeply enough to defy logic.

For me, and for many, many others who are conditioned the same way and surrounded by a culture that continues to encourage the deep belief, the automatic assumption of deficiency is one of the enemies we battle daily. Like our other demons, it is the enemy of creativity and joy. It wants us silent, bound or dead. What it does not want is for us to get up and do something.

Through the Clouds

I want to believe I’ll be creative for the rest of my life.

I want to believe that if I get very ill I’ll use the time and the change in perspective to write, or at least expand my mind by learning a new language or something. I want to believe that if I die of natural causes at an advanced age, my feeble fingers or quavering voice will still be trying to communicate. I want to believe that my mind is and always will be more powerful than my body.

I want to believe my drive toward thought and clarity can always overcome issues with my body. And there is some truth and merit to the idea; there’s truth in the idea that my mind and soul have a great deal of power. There’s truth in the idea that the battle for clarity is not hopeless and that it’s well worth fighting.

That belief, however, is not always backed up by actual experience. My experience has been that my mind’s activities are linked to the functioning of a physical object known as my brain. This organ, whether I like it or not, is a part of my physical body. It’s affected by every other organ I have. It relies on the contents of my bloodstream for oxygen and nutrients. When my body gets sick, or is affected by hormone fluctuations, or takes a new medicine, my brain gets a different cocktail. There’s a tipping point to these things beyond which it’s very hard to muster enough energy or original thought for any productive act.

The truth is that for someone like me, the state of optimal body and brain function is more like a theoretical norm than an actual one in the sense that there always seems to be something going on. As I age and experience more physical issues and age-related cognitive decline, the clouds may get thicker. This thought scares me quite a bit.

As I often do when I feel fear, I grope for a metaphor. Today it’s astronomy.

Astronomers, as least the old-school or amateur types who must perform their observations from the surface of the Earth, try do their field observations on clear nights. When it is cloudy, they reschedule, because the portable instruments they have may not be powerful enough to get anything useful through the cloud cover.

But what if the climate changed and it was always, or nearly always, overcast? They’d have two choices: give up astronomy or build more powerful instruments (or do all their observations from space, but in this metaphor that seems like a post-death thing and we are looking at this lifetime.)

Even if they began to build better instruments, they’d have to accept that they now get less data for more work. They’d have to decide it was still worth the work and dedication.

I have to accept a similar thing. I have to believe that an effort I make on one of my bad days is still vastly, stupendously superior to doing nothing.

Just Sick Enough

When you have a psychiatric diagnosis, there are times when it’s obvious you need help. Other times, it might not be as obvious.

I had to jump through some hoops recently to get seen by a psychiatrist with my new insurance. Among these hoops were multiple rounds of the same questions about the nature and severity of my symptoms.  As I tried to answer as patiently and honestly as possible, I was aware of feeling anxiety about whether I would be deemed “sick enough” to be worthy of care.

You see, although I have been under some form of care for many years, it’s been seven years since the last time I was in a hospital outpatient program and nine years since the last time I was hospitalized outright. I’m only on one relatively benign mood stabilizer.

In recent years, I have been aware of how lucky I am to be where I am. I work hard not to throw this good luck away by falling back into addiction or other self-destructive behavior. But should “doing well” mean I don’t need help any more? Especially with bipolar, where patients are quite likely to float out the door while in a happy place, stop their meds, and wind up in the ER?

So it’s a dance. Be sure to appear “sick enough” to be taken seriously, without appearing so ill that you get a level of intervention you don’t need or want. Be eloquent enough about what goes on in your head to make sure someone knows you aren’t “fixed.”

Why? Why not just have enjoy having fewer appointments and one less thing on your current record? My reason is simple: my condition means that matter how well I am doing, it is possible for me to have a serious episode and need more help. Having a psychiatrist of record means having someone to call for an urgent meds adjustment. In the event of dire need, it means I have a name to give the ER staff.

It’s regrettable that people like me must defend our need to be responsible and prepared for trouble.

The Things I Must Not Write

Some poems, and stories, and essays of mine are not ready to be written because they concern other people too directly. It’s a pity, because I’m sure they would be rich, and dark, and searingly honest. I know some people write memoirs and let the chips fall where they may, but for me it would feel wrong to write really raw stuff specifically about people who are still alive.

Part of my decision is based on fear, I know. The fears many of us have about confronting sources of our deep and sometimes illogical terrors. I’m all about trying to face my fears more often, but I also know my own limits and know that pushing certain things would harm people who don’t have the capacity to deal with it.

I’ve sometimes been advised to write pieces and simply not share them with anyone–don’t read them, don’t submit them, don’t self-publish them. Occasionally I do write some things for a recovery activity or when working with some kind of counselor. In general, though, I feel frustrated at the idea of writing things I am supposed to keep secret.

It doesn’t make sense. Journaling is so highly recommended for creative types; why can’t I get on board with private writing? Is it that I have a hard time giving myself permission to create without some small chance of it enriching others? Or is it just ego?

The Trap Door

An old dating show had prospects standing on a trap door above a dunk tank while being asked questions. At any moment, the contestant asking could push a button and splash! It was all over and the next person would move to stand on the trap door.

I often feel as if I’m in that situation. The feeling grows stronger when I meet and interact with new people, especially if I have a strong desire for those new people to like me and want to see me again. Everyone can have the “If they really knew me, they wouldn’t like me” feelings, but mine tend to center on a few specific things.

For example, yesterday I spent the day with a group of writers at a workshop (an awesome experience, and I am so grateful I was invited despite my lack of funds.) The social part also went well, but I did have one instance of the “trap door” feeling. It happened during lunch when the topic of psych meds came up briefly and several people expressed the common attitude of all psych meds being bullshit and/or evil.

The gears rumbled to life in my head and I began to project. So, if and when they know that I’m someone who chooses to take medication, they will have contempt for me. They’ll decide I am weak, or lazy, or unwilling to face difficult times, or just a compliant sheep controlled by Big Pharma. They’ll write me off. And if they would write me off for this, how quickly will they write me off once they know I am a drug addict in recovery? Should I speak up and tell all of these things about myself as early as possible so they can go ahead and write me off instead of wasting their time?

I felt the trap door opening under my feet. I felt the familiar brick settling onto my chest. I felt the familiar loneliness that tells me “You don’t belong. Don’t get fooled into thinking you could.” 

These moments are part of life for me, and I try not to let them control my actions. I try not to let them trigger defensive counterjudgments or mentally put people into boxes, but it’s hard sometimes. I’m aware that when I do that I am judging people in the same way I don’t want them to judge me.

Poetry…Because Drugs Didn’t Work Out

I used this phrase when meeting my new psychiatrist and got a quizzical look. He’d just asked me what coping mechanisms I use to deal with my symptoms. I’ve used the phrase before with others, or referred to poetry or writing as my “newest vice.” Some people get it right away, some don’t.

It’s like one of my favorite snarky T-shirts, that says “Writing…Because Murder is Wrong.” That one either gets a laugh or a vaguely uncomfortable look.

Poetry, and other writing, are indeed a coping mechanism for me. Doing them is part of my ongoing efforts to break the old patterns that want to keep me silent, ashamed, and stuck. Doing them can help me get through the disorientation or despair of an episode, or at least give me reference points before and after.

Poetry, and all art, is a form of therapy as well as whatever other purposes it has. Some might sneer at those who seem focused on this aspect of it, or draw distinctions between such people and “real” artists. I believe there’s a place for a critical voice in our process, but I also believe there’s a special corner in some hypothetical hell reserved for those whose contempt or elitism discourage creation.

The word therapy comes from the Greek root for to serve. Psychotherapy translates to serving the soul. Whether it’s our soul or others, or what the ratio is, the service exists. When we create something–anything–we influence the world.

Time’s Up

When you’re an introvert, interacting with others is subject to a clock in your head. At a certain point, a timer gives a gentle chime. “That’s all the time we have,” it says, like a therapist at the end of the fifty minutes.

We can ignore the timer, to a degree, if what we are doing or who we are conversing with is important to us. We pay a price later by having to spend even more recovery time in the social equivalent of the fetal position.

For me, part of my trouble in the past was that I didn’t realize I was an introvert, especially because I can be very interactive at times and don’t fear things like public speaking. I just thought I had bouts of “laziness.” It took me a while to see the pattern of them and understand myself a little better.

I understand now that introversion doesn’t mean what I used to think it meant. It’s not shyness or social awkwardness, although those can sometimes go with it. It has to do with the level of stimulation we can handle and the level of our need to focus within.

Learning to accept myself as an introvert is the same as learning to accept myself as an addict, or a person with mental health issues, or anything else. It’s just what I am, and it has its own advantages and disadvantages. Fairness, or desirability, or how well it fits with my culture and circumstances, is irrelevant.

What Do I Want?

Do I know? Do I really know?

I’ve been watching a show called Lucifer, in which the Devil owns a nightclub in LA and has a psychic power to draw out a person’s deepest desires. He only has to look into their eyes and ask. They look mesmerized and blurt out their ambition, or secret love, or person they want to kill.

It makes me think about what I would say, if put on the spot and somehow uncensored. What resemblance, if any, would it have to anything I might predict myself saying? It seems like splitting hairs, I know. If I think I want something, supposedly I do. Whether it is a good idea, or whether I’d be happy if I had it, is beside the point. The wanting is in the thought.

Or is it?

What exists on the surface of my thoughts can be very different from my truth. A lifetime of conditioning, fear-based filters, and cognitive fallacies interfere with a clear vision. We think we want to be happy, but we may have little to no idea what happiness would really look like for us.

What is my real ambition? My real desire? What would I cough up under Lucifer’s gaze?

Sure, I want the basic things most people want. Ego gratification, love, security, good things for others I care about. But there is something else.

It’s hard for me to describe, but I’ve experienced it and I want more. I want to carry it around like a rare jewel and give bits of it to others as talismans. Hell, I want to carry it in myself like a virus and transmit it to others just by being with them. I want people to come away from an encounter with a vague sensation that something is different.

Is it hope? Is it joy, wholeness, love? No words are adequate for the thing I have found somewhere on my journey. The thing that drives me to read poetry, or write it, to catch glimpses of what I desire. It’s illogical and capricious. It’s immortal, indestructible, nonlinear. In the coming era of my life, I am not sure what role I am meant to play. I just know I want to serve the thing.

Maybe Lucifer could draw a better description out of me.

The Conversation

I’ve been having the same conversation for a week.

The topic doesn’t matter. The other person involved doesn’t matter. None of it matters as I write this, because the distinguishing features of this kind of conversation have nothing to do with the actual words.

It’s the one you replay in your head, over and over again, long after the actual dialogue is over.

It’s the one whose sentences you rephrase, over and over again, trying to imagine what you could have said that might have let you be heard.

It’s the one you try to put out of your mind because thinking about it makes your stomach clench and your teeth grind and your chest hurt.

It’s the one that only seeps (mostly) out of your skin with time, fading into mist around you until the next time it coalesces and burns once again.

It’s the one that will never, never, never, never, never,

NEVER

be resolved by any effort you can make.

It’s the black hole. It’s the dry well. It’s absolute zero.

Intellectually, I know this. Even my training as a counselor can’t help me communicate over a large enough gulf between realities. My trouble is that when I get emotional, I forget the truth and get drawn in to the idea that it could be different.

I obsess. I rephrase. I fear. I fall into the psyche of that scared child who thinks it’s possible to change what’s going on around her if she is good enough. My reaction is fueled by my general bipolar symptoms, my usual level of insomnia gets augmented, and I exist in a state of limbic overdrive until I can survive long enough for time to settle things down.

Then, when I can, I do something like writing this. I remind myself that I am not alone. My reality is not dissolving; I still have my voice and my beliefs. The conversation will not claim my life today.

One-Note Solo

I wrote this on my old site Not This Song years ago–and today, I needed to read it again. I need to remind myself that it’s okay to do things badly; to be a clumsy novice. It’s even okay to do things at which I might never particularly excel. I don’t need a reason or a justification for enjoying something. Neither do you.

When I was in second grade, the school had a choir, but the teacher chose which students were allowed to sing in it. So if you didn’t have a natural ability to carry a tune at age seven, having never had any practice or instruction, you were pretty much told that singing was not for you.

When I was nine, I had one season on a girls’ softball team. Now, it’s quite true that I sucked at softball. I was afraid of the ball; I was uncoordinated, and–something we didn’t know then–I couldn’t see worth a damn. This interfered with batting and catching. So softball wasn’t for me at that time…fine. But was it really necessary for the adults to shake their heads and conclude that I was never going to be athletic? It quite literally took decades for me to realize that, with my adult body, I’m not completely lacking in physical gifts.

When I was twelve, I got an F in art. Seriously? Who gives a kid an F in art? I don’t have a problem admitting that my clay dragon sculpture looked more like a dragon turd. I have a problem with being labeled “bad at art” and living in a culture where that meant I wasn’t supposed to do art any more.

I know, my story’s not unique. What matters is what I do about it now. Starting to write is a big part of this: I’m defying the messages that tell me writing is restricted to an elite class, or that it’s only worth doing if it will be well received. The bad poetry thing is another example. I also have aspirations toward becoming a bad artist someday.

There’s one area where I really made progress as an adult, and that’s singing. Thanks to the urging of a friend, I joined a choir with him in freshman year of college. It turned into many years of singing with various amateur groups. I finally got the experience of being new at something, doing it just well enough to get by at first, and gaining in ability and confidence as I got more practice. That concept we call…what was it…learning?

The best choir director I ever knew once said to us: “Don’t sing tentatively. I’d rather have you all slam into an entrance in the wrong place than do the entrance half-assed.” He meant it, too.

One day we were doing a full orchestra rehearsal, and the soprano entrance was a fortissimo (very loud) high G. When you’re a soprano, there’s one thing you learn about hitting those high notes: whatever the volume, full commitment is necessary. If you sing it any other way it will come out flat. The only way to sing it right is to be willing to risk singing it wrong.

It was probably one of the nicest G’s I’ve ever sung. It rang clear and bright, with a crisp start and plenty of feeling behind it.
Too bad it was one measure early.
I blushed bright red as the conductor prepared to start us all again, but I was able to join in the good-natured laughter and smile sheepishly when the director complimented me on my one-note solo.

Thanks, Maestro, for meaning what you said. That errant note made thousands of great notes possible.

You Promised

I just overheard a few lines of a loud couple’s spat. One of them shouted “You promised you wouldn’t break my heart!”

The seventeen-year-old with me commented “That’s a pretty stupid thing to promise.”

I agreed with her, and it made me think about my attitude toward relationships. Have I become cynical about love?

Poetry is full of feelings about love. New love, old love, lost love, unrequited love, sexual love, fraternal love…love in all its forms.

Poetry is full of the ways love makes us feel. Therapy sessions are full of talk about the love we want or our feelings of betrayal about the love we don’t have.

I always wanted the love of others to make me feel better about myself. I used it, along with substances or other forms of escapism, to soothe my fears and frustrations. It didn’t help that I had no idea what love actually looked like. I wanted something, and when I didn’t get it I felt neglected and resentful.

It’s taken me decades to learn that nobody owes me love. That I can’t win love, earn love, manipulate love or simulate love. That love is beyond my understanding or my power to control. Do I feel sad or lonely when I want someone to love me and they don’t? Yes. But I no longer feel like a victim or believe there’s some way I could change it.

I wouldn’t ask anyone to promise they won’t break my heart, and I can’t promise I won’t break theirs.

Burning

I am rediscovering my rage toward addiction.

I anthropomorphize the general phenomenon of addiction; many of us do. Especially as we struggle with abstaining, it can be helpful. You want to resent something? Resent that. You need somewhere to direct your rage, your hatred, your frustration? Hate the thing that wants you dead; that wants us dead. Hate the thing that wants to eat your soul and replace it with its eternal craving.

It’s not that we deny our responsibility for our situation or our duty to keep fighting. But in the midst of the humility we need to seek and find, sometimes we need to rebel. So yes, I welcome the rage and the rebellion sometimes.

I recently spent time in the hospital with an addict who has been on dialysis for years and has now just had open heart surgery. Still on methadone, she has the accompanying high tolerance for pain meds. I listened to her repeated begging for more medication as the pain resisted treatment. I watched her be in the power of nurses–some kind, some not–who questioned the validity of every request.

I watched her frail body curling in on itself, like a leaf curling and withering in a flame. I could almost see addiction as the fire in which she burned.

And I hated that fire.

Isolation

We use the word as a verb often these days. I’m isolating a lot. She started isolating. He tends to isolate when he gets depressed.

Isolating is different from just being an introvert or enjoying solitude. Isolating is ducking phone calls, declining invitations when we do get them, shunning gatherings or meetings we used to attend.

We do it because of depression, or shame, or pain and fatigue. We do it because we are too tired to face the dreaded question “How are you?”

Then we keep doing it because we feel guilty about having done it for a while. Guilty about the phone calls we ducked and the meetings we skipped. Overwhelmed at the thought of trying to explain why we flaked out on interactions when we don’t really understand how it works ourselves–or, if we do understand it well, we may have also learned that understanding it doesn’t make it any easier to explain.

It’s dangerous for us. It can make depression worse. If we are in recovery from an addiction, it increases our chance of relapse. It’s bad for our physical health and narrows our world in a way that can let our negative thoughts and traits begin to dominate.

So how do we stop doing it? How do stop doing it?

One thing that’s really hard for me to accept, even after years of work, is that my mental health issues may always manifest in cycles of mood and ability to interact. For me, the struggle is about harm reduction and trying to reduce the shame and fear that extend a cycle of isolation past its natural life span.

And when I find a foolproof way of doing that, I’ll be sure to let you know.

Fear Not?

I chose today’s piece because fear has been clamping down on my creativity lately. Just like any other emotional state, fear comes in both useful and useless varieties when it comes to writing–with the useless kind, my brain freezes or flees into escapist behaviors. So…

(Originally posted on my old page Not This Song, 2015)

How much does fear rule your life?

Those who do some kind of deep self-examination are often surprised to see how deeply, widely, and diversely fear is imbedded in their psyche. I don’t think I was surprised to find its presence in some deep places, but it was enlightening to see how much of my daily behavior is fueled by it on some level.

It’s hard to admit how afraid I am. It’s easy to buy into the idea of courage and strength being incompatible with the presence of great fear. It’s easy to forget how different we are from one another sometimes; that something only mildly frightening to one person may be a source of utter terror to someone else.

There’s an old story about two soldiers in a trench during World War I, waiting through the tense hours before a charge. One sits calmly, while the other paces incessantly, chain-smoking and talking nonstop. The calm one makes a disparaging remark about his nervous comrade, and the other replies: “My friend, if you were as afraid as I am, you would have run away a long time ago.”

I am afraid the way that soldier is. Too afraid to pretend not to be, too afraid to carry things off with style. I need to comfort myself with stories like this, becasue when I scratch the surface of my skin hard enough to penetrate the thin layers of maturity and faith I find a sea of fear. I think I need a hundred words for the many different varieties of fear, with their subtle shadings of meaning and manifestation.

If you’ve ever been afraid the way I am, you know that it doesn’t respond to logic. Oh, some fears do, or they can be soothed with emotional support, or by questioning them with cognitive-behavioral techniques. But there are kinds of fear so primitive, so nonverbal, so far beyond any mental construct that our attempts to soothe them feel like trying to send a T-rex to therapy.

One kind is what psychologists call “annihilation anxiety.” It’s what it sounds like: fear of utter destruction, unmaking, nothingness. Its roots lie very early in life–in the stage of complete dependence of an adult figure and the terror that losing said figure’s love would mean destruction–and it’s nonverbal and primal enough that sometimes I don’t even realize it’s come up until I’ve been reacting to it for days.

Primal fear comes up in our old baggage and in new baggage that got influenced by the old. It’s what is operating when we do things in our relationships that just don’t make sense; when our therapist and friends and whoever have a clear, obvious idea what should be done, who should be confronted, who should be left, but the thought of actually doing it is–well–unthinkable.

What to do about it? Oh, you already know what I’m going to say. There is no swift and logical cure for this kind of fear. There’s no cure at all–only the chance to go into remission. To fight the fear to a standstill and wait for it to get tired and take a break. But how to fight something you can’t see, or speak to, or argue with? Can a sword cut darkness?

No, it can’t. Nor can clever words convince it to retreat. There are only two things I can do: first, stop acting out in a futile attempt to drown the fear under more familiar pain. Then huddle close to the fire. Feed the fire, watch the fire, and don’t let it go out, and try not to think too hard about what will happen if it does. Feed the fire of my Self; yes, and the Self, whatever mystic force that is. Everything I am that is not nothingness. Everything I am, and was, and will be, that is the opposite of nothingness.

Winning Formula

There’s no one way to stimulate creativity. For me, the seeds of a new poem can come at the oddest times. One thing I’ve noticed, however, is the role played by boredom, fatigue, or concentrating on a task like driving or dishes. A mental state in which thoughts drift randomly and hook up in unexpected ways.

Recently, I had the most glaring example of this…it was the night before my father-in-law died, and I was up at the family’s home being with them in their vigil. We were all catching bits of sleep where we could, in between listening to his breathing. I lay in a trundle bed, stupidly tired, and could not fall asleep. I listened to some music on my headphones, tried again; still no dice.

My mind began to wander, and BAM! the seed of a new poem appeared. Was it a poem about death, or grief, or what it’s like waiting for it this way? No. The poem is (as far as I can tell at this stage) completely unrelated to what was going on. The trigger appears to have been a phrase in a poem I’d read the day before, linked to a different poem I’d been working on, linked to a song I had heard…you get the idea. These things drifted through my fatigue-drugged mind and collided.

And it wasn’t just an idea, it was an idea. One of those juicy ones that gives you a little shiver when it clicks into place.

Those who speak of the drawbacks of technology, or those who caution against the overscheduling of children’s lives, understand that we all need time to daydream. Boredom and random mental drifting are vital to imagination. I know that I interfere with my creativity when I distract myself from insomnia with my iPad instead of just letting myself drift, although I forgive myself because it’s the least of evils at times.

The Poet of Wickedness

“I am not the poet of goodness only, I do not decline to be the poet of wickedness also.”

—–Walt Whitman

Today’s picture prompt made me think of the Shadow.

The jagged, irregular boundary of it in the picture reminds me of how I live inside my head.

Now, I know what Jung says about the Shadow, and how important and valid it is. But right now, I’m just thinking in child’s fairytale terms of light/dark, life/death. Indulge me.

Part of me would like to believe that I am 99% a child of Light (whatever I define that to be) but that is not even close to true.

Suicide prevention is a cause dear to my heart, and the creative pursuit of one more day is part of what my other site is about. I believe I write as a force on the side of life–but when it comes to poetry, it may not seem so clear in my words.

The poet I am is not a nice person.

Even when I write about nice subjects, dark stuff can creep in. When I write about something that’s already not so nice–look out. I’m usually not happy until the result gives me a creepy feeling on the back of my neck and a vague disturbance in the region of my belly button.

So, when I let the darkness run rampant on my page, am I still fighting on the side I believe in? The side I need to pour energy into if I want to stick around here?

Yes.

If “Beauty is truth, truth beauty”—then yes.